Our RettEd Day at Nationwide Children’s Hospital, an IRSF Center of Excellence, is for everyone wanting to connect with experts in the field of Rett syndrome, especially families, caregivers, educators, clinicians, and therapists.
When
April 5, 2025
9a - 5p ET
*Doors open 8a; social activity 3:30-5p
Where
NCH Stecker Auditorium
555 S. 18th Street
Columbus, OH 43205
cost
$10 per person*
*FREE for individuals with Rett syndrome and children 12 & under.
Learn from the experts.
The RettEd Day will consist of a full day of programming and speakers from 9 a.m. to 3:30 p.m., followed by a social activity until 5 p.m. Topics to be covered include:
- NCH Clinic updates
- IRSF Updates
- Epilepsy, Movements, Dystonia
- Genetics
- Psychology
- Communication
- PT
- Nutrition
- Attendee Q&A Session
A full agenda will be available closer to the event date.
Speaker Highlights
Registration opens at 8:00 a.m. The meeting will consist of a full day of programming and speakers from 9 a.m. to 3:30 p.m., followed by a social activity until 5 p.m.
NCH Rett Syndrome Clinic
Nationwide Children's Hospital
International Rett Syndrome Foundation
Additional Information
Who can attend?
This Ed Day is an opportunity for adult caregivers to meet with NCH Rett experts, with IRSF, and with each other. Childcare will not be offered, but those with Rett syndrome may Register at no charge. There is quiet space outside of the main session room that we request Attendees utilize to maintain a respectful listening and learning environment during presentations.
Please note that registration will end April 1st.
Parking & Directions
Visitor parking is $2 per day at the Orange Parking Garage (543 S. 18th Street, Columbus, OH 43205).
For directions and more information, CLICK HERE.
Cancellation Policy
Confirmed registrations will not be refunded.
IRSF is committed to providing quality programming at our RettEd Days. Please note: speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made. For more information, please contact pnues@rettsyndrome.org.
Hotel Accommodations
Rooms at the nearby Home2 Suites by Hilton Columbus Downtown are available at a negotiated rate of $119/night + tax. A complimentary breakfast is included. Parking overnight is $12 per night/per car. The hotel is a 5-minute drive or a 16-minute walk from the hospital.
To secure this rate please book your room by CLICKING HERE.
Meals
A continental breakfast, lunch, and social hour reception will be provided.
Our Sponsors
Thank you to our 2025 National Education Sponsors for helping IRSF provide educational resources and support to families affected by Rett syndrome.
Presenting empowerment sponsor
Education sponsors
Be a champion for Rett syndrome.
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