Our RettEd Day at Children’s Hospital Los Angeles, an IRSF Center of Excellence, is for everyone wanting to connect with experts in the field of Rett syndrome, especially families, caregivers, educators, clinicians, and therapists.
When
May 3, 2025
9a - 5p PDT
*Doors open 8a; social activity 3:30-5p
Where
Anderson Pavilion Conference Center
4650 W. Sunset Blvd.
Los Angeles, CA 90027
cost
$10 per person*
*FREE for individuals with Rett syndrome and children 12 & under.
Learn from the experts.
The RettEd Day will consist of a full day of programming and speakers from 9 a.m. to 3:30 p.m., followed by a social activity until 5 p.m. Topics to be covered include:
- CHLA Clinic updates
- IRSF Updates
- Epilepsy, Movements, Dystonia
- GI
- Sleep
- Treatments and Gene Therapies
- Communication
- Health and Wellness
- Family Resources
- Attendee Q&A Session
A full agenda will be available closer to the event date.
Speaker Highlights
Registration opens at 8:00 a.m. The meeting will consist of a full day of programming and speakers from 9 a.m. to 3:30 p.m., followed by a social activity until 5 p.m.
Keck School of Medicine of USC
Medical Director
Rett Syndrome Clinic
Texas Children's Hospital,
Baylor College of Medicine
International Rett Syndrome Foundation
Additional Information
Who can attend?
This RettEd Day is an opportunity for adult caregivers to meet with CHLA Rett experts, with IRSF, and with each other. Childcare will not be offered, but those with Rett syndrome may register at no charge. There will be private spaces outside of the main session room that we request attendees utilize to maintain a respectful listening and learning environment during presentations.
Please note that registration will end on Tuesday, April 29th.
Parking & Directions
Enter the main driveway at the hospital and follow instructions into underground parking. Parking vouchers will be provided upon request at RettEd Day check-in.
Once you have arrived, use the main hospital entrance. The Anderson Conference Center is located on the first floor.
For directions and more information, CLICK HERE.
Cancellation Policy
Confirmed registrations will not be refunded.
IRSF is committed to providing quality programming at our RettEd Days. Please note: speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made. For more information, please contact pnues@rettsyndrome.org.
Hotel Accommodations
Rooms at the nearby Hilton Garden Inn Los Angeles/Hollywood are available at a negotiated rate of $207/night + tax. To secure this discounted rate, rooms must be booked by April 2nd.
To book your room, CLICK HERE or call the central reservations at (800) 774-1500 and reference group code IRSF.
Meals
A continental breakfast, lunch, and social hour reception will be provided.
Our Sponsors
Thank you to our 2025 National Education Sponsors for helping IRSF provide educational resources and support to families affected by Rett syndrome.
Presenting empowerment sponsor
Education sponsors
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