Rett Education Programs
IRSF’s Rett Education (RettEd) programs provide families with essential knowledge and meaningful ways to connect with the Rett syndrome community.
Empowering you with the knowledge to thrive
At IRSF, we believe that every family and caregiver should be empowered with the information and knowledge needed to help your loved one with Rett thrive. We offer a menu of educational resources, opportunities, and family events where you can learn both from professional experts and other families who have walked this path before. Check out our in-person and online RettEd programs below.
Discover RettEd Events
Gain knowledge, make connections, and find inspiration through these signature events, designed to empower families and caregivers with tools and insights from leading experts in Rett syndrome care and research.
Designed to unite us as a community, this biennial event brings together parents, families, clinicians, researchers, and Rett organizations from around the world.
Held at select IRSF-designated Centers of Excellence, RettEd Days are 1-day sessions designed to provide information, enrichment, and connection for anyone involved in the care of a loved one with Rett syndrome.
IRSF’s RettAway is a destination vacation for families to spend time together and build connections with other members of our Rett community.
RettEd Live Webinar Series
Stay updated and informed with our live webinar series, featuring specialists across various fields. These sessions provide valuable insights and practical guidance for managing Rett syndrome at every stage.
MECP2 and Rett Syndrome: How Do Your Child's Genes Fit into Gene Therapies?
Tue, Feb 4 @ 11a ET
RettEd Video Library
Access our library of recorded sessions, covering topics from basic care to advanced research updates. Perfect for on-demand learning at your convenience.
Rett Forward: A Clinical Trial Master Class
Rett Forward, IRSF’s free educational platform, offers a clear, accessible path for anyone seeking to better understand the process of gene therapy and clinical trials. Designed with input directly from the Rett community, this self-paced educational course breaks down key topics like trial design, participant experience, and emerging treatments. The clinical research journey can feel overwhelming—but Rett Forward was designed to make it clear, approachable, and empowering for families.
We want to hear from you
Have questions or feedback? Our team is here to help you find the resources you need.