Receiving a Rett syndrome diagnosis can feel overwhelming, but you are not alone. We provide essential resources to help you understand what to expect and make informed decisions for your child’s care and future. 

Everyday life with Rett syndrome presents unique challenges and opportunities. We provide practical resources and strategies to enhance quality of life and foster well-being for both you and your loved one with Rett syndrome.

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Our RettEd programs offer educational opportunities tailored to you. Including both in-person and virtual events, these programs are designed to empower families and caregivers with the knowledge they need to navigate the journey ahead.

Connecting with others who understand can be invaluable. Find opportunities to share experiences, advice, and encouragement. Join groups and programs that foster understanding, create friendships, and build a strong, supportive network that lasts a lifetime.

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Participating in clinical trials is a powerful way to contribute to breakthroughs in Rett syndrome treatments and care. Learn more about the research and clinical trial process, and how you can play a vital role in paving the way for new treatments and cures.