Please join us Tuesday, September 8, 2020 at 5:00pm Eastern Time (New York) with Rettsyndrome.org and a panel of creative experienced parents who are ready to share their Rett Life Hacks, especially how to plan and execute inclusive and enjoyable dress-up and gift-giving celebrations for the whole family such as birthday parties, Halloween, school field trips and the upcoming holidays. “Life Hacks” are simple and clever tips and techniques for accomplishing tasks more easily and efficiently, overcoming many of our common Rett-life frustrations in simple and deliciously clever ways.
Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how a little creativity and out-of-the-box thinking can expand everyone’s horizons!
With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
9th Annual Nebraska Strollathon – Virtual Edition
Join Us for the 9th Annual Nebraska Strollathon
At Rettsyndrome.org, the health & well being our of community is of utmost importance. Due to the Covid-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY! We have some tricks up our sleeve to make it a fun & engaging experience!
Saturday, September 12th 2020
Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion
Information & Registration
WHEN: Saturday, September 19, 2020
TIME: 8:30 AM
LOCATION: Busse Woods, Grove 28
Elk Grove Village, IL
Contact info: Diane Ross (diross62@aol.com).
From the serious runner to the recreational runner, to family members and friends of all ages the Run For Rett is an event you don’t want to miss. Make a difference in the life of those affected by Rett Syndrome and join us for the Run For Rett 5K Run/Walk & 1 Mile Fun Run.
Southeast Rettsyndrome.org Ed Day
September 19, 2020
Greenwood, SC (in partnership with Greenwood Genetic Center)
Our Ed Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
Registration opening soon.
17th Annual Cincinnati Strollathon: Virtual Edition
Join us for the 17th Annual Cincinnati Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!
Be sure to follow us on Facebook to stay up to date on our fun virtual activities: facebook.com/Cincinnati-Tri-State-Strollathon
Date: September, 26th, 2020
Location: your neighborhood, walking trail or treadmill!
Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato
7th Annual Maine Strollathon: Virtual Edition
Join us for the 7th Annual Maine Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!
Date: September, 26th, 2020
Location: your neighborhood, walking trial or treadmill!
Stroll Chair: Evie Swan (775-200-8788 or evielynn6@gmail.com)
Moonshiner’s Ball
Date: Saturday, October 3, 2020
Time: 5:00 PM – 11:00 PM
Location: Space Coast Harley-Davidson
1440 Sportsman Lane Northeast
Palm Bay, FL 32905
The Event will consist of Moonshine from around the country, and Special Guest Tim Smith from the hit TV show “Moonshiners”. The Blue Diamond band will be performing, and we will have vendors, food trucks, and even Firecracker, the mechanical bull.
14th Annual Minnesota Strollathon
Join us for the 14th Annual Minnesota Strollathon!
- Sunday October 4th, 2020
- Registration: 12:30pm, Stroll: 2:00pm
- Location: Savage Environmental Learning Center
- Website :: Directions
- Event Chair: Mary Kallstrom (marykallstrom@q.com)
Please join Rettsyndrome.org on Tuesday, October 13, 2020 at 1:00pm Eastern Time (New York) for status updates on clinical trial and research enrollment opportunities in the U.S.
Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how we all have a role to play in research progress.
With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
13th Annual St. Louis Strollathon
Dates: Saturday, October 17, 2020
Location: JCC St Louis, 2 Millstone Campus Drive, St Louis, MO 63146
Registration: 9am
Stroll: 10am
Event Chairs: Joyce Opinsky & Amy Kreher (stlstrollathon@gmail.com)