Events

Sep
12
Sat
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9th Annual Nebraska Strollathon: Virtual Edition
Sep 12 @ 9:00 am

9th Annual Nebraska Strollathon – Virtual Edition

Join Us for the 9th Annual Nebraska Strollathon

At Rettsyndrome.org, the health & well being our of community is of utmost importance. Due to the Covid-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY! We have some tricks up our sleeve to make it a fun & engaging experience!

Saturday, September 12th 2020
Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion
Information & Registration

Sep
19
Sat
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Run For Rett 2020
Sep 19 @ 8:30 am

WHEN: Saturday, September 19, 2020
TIME: 8:30 AM
LOCATION: Busse Woods, Grove 28
Elk Grove Village, IL
Contact info: Diane Ross (diross62@aol.com).

From the serious runner to the recreational runner, to family members and friends of all ages the Run For Rett is an event you don’t want to miss. Make a difference in the life of those affected by Rett Syndrome and join us for the Run For Rett 5K Run/Walk & 1 Mile Fun Run.

Information & Registration

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Southeast Rettsyndrome.org Ed Day
Sep 19 @ 9:00 am

Southeast Rettsyndrome.org Ed Day

September 19, 2020
Greenwood, SC (in partnership with Greenwood Genetic Center)

Our Ed Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

Registration opening soon.

Sep
26
Sat
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17th Annual Cincinnati Strollathon: Virtual Edition
Sep 26 @ 9:00 am

17th Annual Cincinnati Strollathon: Virtual Edition

Join us for the 17th Annual Cincinnati Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!

Be sure to follow us on Facebook to stay up to date on our fun virtual activities: facebook.com/Cincinnati-Tri-State-Strollathon

Date: September, 26th, 2020
Location: your neighborhood, walking trail or treadmill!
Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato

Information & Registration

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7th Annual Maine Strollathon: Virtual Edition
Sep 26 @ 9:00 am

7th Annual Maine Strollathon: Virtual Edition

Join us for the 7th Annual Maine Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!

Date: September, 26th, 2020
Location: your neighborhood, walking trial or treadmill!
Stroll Chair: Evie Swan (775-200-8788 or evielynn6@gmail.com)

Information & Registration

Oct
3
Sat
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Moonshiner’s Ball
Oct 3 @ 5:00 pm

Moonshiner’s Ball

Date: Saturday, October 3, 2020
Time: 5:00 PM – 11:00 PM
Location: Space Coast Harley-Davidson
1440 Sportsman Lane Northeast
Palm Bay, FL 32905

The Event will consist of Moonshine from around the country, and Special Guest Tim Smith from the hit TV show “Moonshiners”. The Blue Diamond band will be performing, and we will have vendors, food trucks, and even Firecracker, the mechanical bull.

Information & Registration

Oct
4
Sun
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14th Annual Minnesota Strollathon
Oct 4 @ 9:00 am

14th Annual Minnesota Strollathon

Join us for the 14th Annual Minnesota Strollathon!

Information & Registration

Oct
13
Tue
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RettEd: Clinical Trial Update
Oct 13 @ 1:00 pm

Please join Rettsyndrome.org on Tuesday, October 13, 2020 at 1:00pm Eastern Time (New York) for status updates on clinical trial and research enrollment opportunities in the U.S.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how we all have a role to play in research progress.

With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Oct
17
Sat
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13th Annual St. Louis Strollathon
Oct 17 @ 9:00 am

13th Annual St. Louis Strollathon

Dates: Saturday, October 17, 2020

Location: JCC St Louis, 2 Millstone Campus Drive, St Louis, MO 63146
Registration: 9am
Stroll: 10am
Event Chairs: Joyce Opinsky & Amy Kreher (stlstrollathon@gmail.com)

Information & Registration

Oct
24
Sat
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18th Annual SoCal Picnic & Strollathon
Oct 24 @ 9:00 am

18th Annual SoCal Picnic & Strollathon

Join us for the 18th Annual SoCal Picnic & Strollathon!

  • Date: October, 24th, 2020
  • Time: 12:00pm-4:00pm
  • Location: Whitter High School, 12417 East Philadelphia Street, Whittier CA 90601
  • Event Contact: Sherri Brady (562-619-0109 or mom2lcm@gmail.com)

Information & Registration

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