Events

Aug
5
Sat
IRSF RettEd Day with UCSF Oakland Children’s CoE
Aug 5 all-day

Date: Saturday, August 5, 2023
Time (Tentative): 8:00 a.m. – 4 p.m. Pacific Time
Location: Camp Arroyo (5535 Arroyo Rd, Livermore, CA 94550)

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

More info coming soon!

Sep
9
Sat
IRSF RettEd Day with UTSW Dallas CoE
Sep 9 all-day

Date: Saturday, September 9, 2023
Time (Tentative): 8:00 a.m. – 4 p.m. Central Time
Location: Rett Syndrome & Related Disorders Clinic (Dallas, TX)

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

More info coming soon!

Fill Your Freezer for Rett 2023
Sep 9 all-day

The Morrison Family is hosting a pig raffle fundraiser in honor of their daughter, Savannah, who has Rett syndrome.

Each prize is for half of a processed pig! Two prizes are available, and one person can win both prizes. Tickets are now available for purchase and the drawing will be hosted on Saturday, September 9th.

*Must be located within 180 miles of Dragoon, AZ for local delivery. Outside of that range, winner(s) must be willing to pick up. Should winner choose to donate back the meat, an additional winner(s) will be drawn.

MORE INFORMATION

Please direct any questions to Sarah & Lonnie Morrison:
Sarah: 206-947-0176
Lonnie: 520-507-1593

Sep
30
Sat
IRSF RettEd Day with Montefiore CoE
Sep 30 all-day

Date: Saturday, September 30, 2023
Time: 9:00 a.m. – 5 p.m. ET (registration opens at 8:30a)
Location: The Children’s Hospital at Montefiore (Bronx, New York)

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

More info coming soon!

A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!
It’s Giving Tuesday - Go ALL IN for Rett!