Events

Jun
9
Fri
Rip it for Rett Golf Tournament
Jun 9 @ 7:00 am

Date: Friday, June 9th, 2023
Location: Dunegrass Golf Club (200 Old Dunes Way, Old Orchard Beach, ME 04064)
Time: 7 a.m. Registration | 8 a.m. Scramble

The Rip it for Rett, hockey themed golf tournament is a blast (if we do say so ourselves), a great round of golf on a great course with really awesome people. What more can you ask for? Find out the details on how to get in on the fun!

INFORMATION & REGISTRATION

Jun
22
Thu
2023 RettAway
Jun 22 – Jun 25 all-day

Date: June 22-25, 2023
Location: Morgan’s Wonderland Accessible Theme Park (5223 David Edwards, San Antonio, TX 78233)
For Event Information & FAQs, CLICK HERE.

IRSF’s RettAway is a destination vacation for families to spend time together and build connections with other members of our Rett community. It’s not a conference – there are no meetings or educational presentations. It’s an exclusive opportunity for your family to have fun together in a location that understands the challenges and joys of caring for a loved one with Rett syndrome.

This year’s RettAway brings us back to Morgan’s Wonderland in San Antonio, Texas! Join us for a long weekend of fun in the sun at this accessible theme park, including an afternoon at Morgan’s Inspiration Island Splash Experience reserved just for Rett families. There will be ample time to catch up with friends new and old throughout the weekend or explore all the city has to offer. No matter where you are on your Rett journey, there will be activities, support, and bonds to be made at this June’s RettAway!

REGISTRATION & HOTEL INFORMATION

Already registered?

Make sure to RSVP “Going” on the Facebook event page to stay up to date on deadlines, information, and to make plans to connect with other families!

Sponsored by:

Aug
5
Sat
IRSF RettEd Day with UCSF Oakland Children’s CoE
Aug 5 all-day

Date: Saturday, August 5, 2023
Time (Tentative): 8:00 a.m. – 4 p.m. Pacific Time
Location: Camp Arroyo (5535 Arroyo Rd, Livermore, CA 94550)

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

More info coming soon!

Sep
9
Sat
IRSF RettEd Day with UTSW Dallas CoE
Sep 9 all-day

Date: Saturday, September 9, 2023
Time (Tentative): 8:00 a.m. – 4 p.m. Central Time
Location: Rett Syndrome & Related Disorders Clinic (Dallas, TX)

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

More info coming soon!

Fill Your Freezer for Rett 2023
Sep 9 all-day

The Morrison Family is hosting a pig raffle fundraiser in honor of their daughter, Savannah, who has Rett syndrome.

Each prize is for half of a processed pig! Two prizes are available, and one person can win both prizes. Tickets are now available for purchase and the drawing will be hosted on Saturday, September 9th.

*Must be located within 180 miles of Dragoon, AZ for local delivery. Outside of that range, winner(s) must be willing to pick up. Should winner choose to donate back the meat, an additional winner(s) will be drawn.

MORE INFORMATION

Please direct any questions to Sarah & Lonnie Morrison:
Sarah: 206-947-0176
Lonnie: 520-507-1593

Sep
30
Sat
IRSF RettEd Day with Montefiore CoE
Sep 30 all-day

Date: Saturday, September 30, 2023
Time: 9:00 a.m. – 5 p.m. ET (registration opens at 8:30a)
Location: The Children’s Hospital at Montefiore (Bronx, New York)

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.

More info coming soon!

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