Date: Friday, June 9th, 2023
Location: Dunegrass Golf Club (200 Old Dunes Way, Old Orchard Beach, ME 04064)
Time: 7 a.m. Registration | 8 a.m. Scramble
The Rip it for Rett, hockey themed golf tournament is a blast (if we do say so ourselves), a great round of golf on a great course with really awesome people. What more can you ask for? Find out the details on how to get in on the fun!
Date: June 22-25, 2023
Location: Morgan’s Wonderland Accessible Theme Park (5223 David Edwards, San Antonio, TX 78233)
For Event Information & FAQs, CLICK HERE.
IRSF’s RettAway is a destination vacation for families to spend time together and build connections with other members of our Rett community. It’s not a conference – there are no meetings or educational presentations. It’s an exclusive opportunity for your family to have fun together in a location that understands the challenges and joys of caring for a loved one with Rett syndrome.
This year’s RettAway brings us back to Morgan’s Wonderland in San Antonio, Texas! Join us for a long weekend of fun in the sun at this accessible theme park, including an afternoon at Morgan’s Inspiration Island Splash Experience reserved just for Rett families. There will be ample time to catch up with friends new and old throughout the weekend or explore all the city has to offer. No matter where you are on your Rett journey, there will be activities, support, and bonds to be made at this June’s RettAway!
REGISTRATION & HOTEL INFORMATION
Already registered?
Make sure to RSVP “Going” on the Facebook event page to stay up to date on deadlines, information, and to make plans to connect with other families!
Sponsored by:
Date: Saturday, August 5, 2023
Time (Tentative): 8:00 a.m. – 4 p.m. Pacific Time
Location: Camp Arroyo (5535 Arroyo Rd, Livermore, CA 94550)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
More info coming soon!
Date: Saturday, September 9, 2023
Time (Tentative): 8:00 a.m. – 4 p.m. Central Time
Location: Rett Syndrome & Related Disorders Clinic (Dallas, TX)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
More info coming soon!
The Morrison Family is hosting a pig raffle fundraiser in honor of their daughter, Savannah, who has Rett syndrome.
Each prize is for half of a processed pig! Two prizes are available, and one person can win both prizes. Tickets are now available for purchase and the drawing will be hosted on Saturday, September 9th.
*Must be located within 180 miles of Dragoon, AZ for local delivery. Outside of that range, winner(s) must be willing to pick up. Should winner choose to donate back the meat, an additional winner(s) will be drawn.
Please direct any questions to Sarah & Lonnie Morrison:
Sarah: 206-947-0176
Lonnie: 520-507-1593
Date: Saturday, September 30, 2023
Time: 9:00 a.m. – 5 p.m. ET (registration opens at 8:30a)
Location: The Children’s Hospital at Montefiore (Bronx, New York)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
More info coming soon!