The Shirley family is hosting the 2nd Annual Great Rett Shootout.
Friday, May 1st.
Come out and break some clays as they raise funds on behalf of their daughter Dayton and many others affected by Rett syndrome.
Registration, sponsorships and donation options are listed below. For any questions, please contact Kent & Amanda Shirley at firstname.lastname@example.org. Be sure to follow their Facebook page for event updates: https://www.facebook.com/TheGreatRettShootout/.
13th Annual St Louis Strollathon
Saturday, May 2th, 2020
Registration: 9:00am, Stroll: 10:00am
Location: JCC, 2 Millstone Campus Dr., St. Louis, MO 63146
4th Annual Iowa Strollathon
Saturday, May 2th, 2020
Location: Kinzler Construction Services, 700 SE Oralabor Rd, Ankeny IA 50021
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we are following the recommendations of the CDC and post-poning or cancelling our upcoming in-person events. At this time, we have decided to cancel the 8th Annual Charamella Golf Tournament for 2020. We apologize for the inconvenience and will be happy to refund any golfers/sponsors.
Award-winning neuroscientist and Rett syndrome expert Dr. Alysson Muotri, Director of the Stem Cell Program at the University of California at San Diego, will share how he and his lab are pushing the limits of science in the name of your child with Rett syndrome.
Dr. Mutori’s lab uses animal models, neural stem cells, human and other primates’ pluripotent cells, and several tools to investigate brain development, evolution, and neural disorders, including Rett syndrome.
Dr. Muotri has received recent headline attention for his experiment to study the impact of microgravity on human brain development, research which could improve disease modeling for neurodegenerative and developmental disorders as well as give clues into the future of humanity in space.
Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
12th Annual Michigan Strollathon
Date: Sunday, May 17, 2020
Location: Drake Sport Park, 6801 Drake Rd, West Bloomfield Township, MI 48322
Registration: 10:00am, Stroll: 11:00am
The Ella Foard Foundation hosts the 11th Annual Charity Golf Classic on Monday, June 1st at Providence Country Club! Enjoy an exciting round of golf in a beautiful setting – all for a great cause!
The tournament includes 18 Holes of Captain’s Choice Golf, Coffee & Pastries upon arrival, Lunch and Awards Dinner, Raffles & Goody Bags, Skill (Luck?) Contests, and a Silent Auction!
8:30 – Registration/Driving Range Opens
9:45 – Lunch and Group Pictures
10:00 – Shotgun Start
3:00 – Awards Dinner
East Coast Rettsyndrome.org Ed Day
June 6, 2020
Baltimore, MD (in partnership with Kennedy Krieger Institute )
Our Ed Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
We are pleased to partner with the Kayla Mosca Foundation to bring back the RettGetAway for 2020. The RettGetAway is for everyone wanting to connect with families and loved ones living with Rett. Attendees will enjoy an extended weekend full of acceptance and experiences, learning together how to live a life without limits!