Events

Apr
24
Mon
Hannah’s Hope Golf Tournament
Apr 24 @ 7:00 am

**RESCHEDULED**

Date: Monday, April 24, 2023
Time: Registration 7:00 am ET; First flight tee off 8:30 am ET
Location: Hillcrest Golf & Country Club (4011 N Boston Ave, Lubbock, TX 79415)
Continental breakfast items available and lunch will be provided

We invite you to take part in the First Annual Hannah’s Hope Golf Tournament rescheduled for April 24, 2023 at Hillcrest Country Club. This tournament will benefit the International Rett Syndrome Foundation in honor of Hannah Hooks.

The inspiration behind our tournament is 10-year-old Hannah Hooks. Hannah lives in Lubbock and is in 5th grade at Lubbock-Cooper West Elementary. Hannah was born with a rare disease called Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that leads to severe impairments, affecting nearly every aspect of the child’s life. In April of 2022 IRSF hosted their National Science and Family Summit and presented an update on a treatment for Rett Syndrome. Rett Syndrome has been treated in mice and there are multiple clinical trials going on throughout the world to bring a cure to the males and females living with Rett. A treatment for Rett will also lead to breakthroughs in many other diseases and disorders. In order to continue research, organizations like International Rett Syndrome Foundation need funds to contribute to the many companies who are seeking a treatment.

Information & Registration

Jun
5
Mon
2023 IRSF Rett Syndrome Scientific Meeting
Jun 5 – Jun 7 all-day

Date: June 5-7, 2023
Time: All Day
Location: Nashville, Tennessee

INFORMATION & ABSTRACT SUBMISSION

The research community is invited to join us in Nashville once again for the 2023 IRSF Rett Syndrome Scientific Meeting next June! The goal of this meeting is to bring together researchers studying Rett and related fields in academia, industry, and governmental agencies from all around the world. Together, we will continue to break down barriers and discuss ways to leverage learning in the lab to be rapidly deployed to the clinic. The meeting will consist of both poster and oral presentation sessions focused on basic, translational, and clinical work on Rett syndrome.

The abstract submission deadline is February 10, 2023. We invite all researchers to share their findings and join us to discuss the latest in Rett syndrome science.

Information on registration, accommodations, and more coming in early 2023.

Jun
22
Thu
2023 RettAway
Jun 22 – Jun 25 all-day

Date: June 22-25, 2023
Location: Morgan’s Wonderland Accessible Theme Park (5223 David Edwards, San Antonio, TX 78233)

Save the date to join us at Morgan’s Wonderland Accessible Theme Park! We’ll be spending the day at Morgan’s Inspiration Island Splash Experience, a tropical-island paradise with colorful splashpads, a river boat adventure ride, and more!

More information coming soon!