Topic: Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Speaker: Dr. K Motil, BCM, Texas Children’s Hospital
Audience questions are all addressed by our Speaker within the recording
Topic: IEP: Strategies for Rett Success
Speaker: Valerie Owen, PhD
(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording
The Color Run® is partnering with Rettsyndrome.org in several major cities hosting The Color Run Dream Tour, Presented by Lay’s® to help increase Rett syndrome awareness and support efforts to find a cure.
Topic: Communication- Making it Count
Speaker: Judy Lariviere, M.Ed.,OTR/L, UCSF
(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording
Topic: U.S.-Russia Rett syndrome Cultural Exchange
Speaker: Olga Timutsa, President, Rett Syndrome Association of Russia, Mother to Katerina
Olga Timutsa will be visiting the U.S. as a guest of Rettsyndrome.org for a cultural exchange focused on diagnosis, care, and life for children and adults with Rett syndrome and their families. Hear Olga share about life in Russia with Rett syndrome and how our research and efforts have a global impact.
Topic: Understanding Autonomic Dysfunction in Rett Syndrome
Speaker: Jeff Neul, MD, PhD, Vanderbilt University
(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording
Topic: Epilepsy: Incidence, Treatments & Research
Speaker: Eric Marsch, MD, PhD, CHOP