Events

Mar
13
Tue
Puberty and Adulthood: Information for moms, dads, everyone!
Mar 13 @ 1:00 pm – 2:30 pm

Topic: Puberty and Adulthood: Information for moms, dads, everyone!
Speaker: Jane Lane, RN, UAB

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Audience questions are all addressed by our Speaker within the recording

Apr
10
Tue
Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Apr 10 @ 1:00 pm – 2:30 pm

Topic: Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Speaker: Dr. K Motil, BCM, Texas Children’s Hospital

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Audience questions are all addressed by our Speaker within the recording

May
8
Tue
IEP: Strategies for Rett Success
May 8 @ 1:00 pm – 2:30 pm

Topic: IEP: Strategies for Rett Success
Speaker: Valerie Owen, PhD

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

May
26
Sat
Color Run
May 26 @ 9:00 am – 10:00 am

The Color Run® is partnering with Rettsyndrome.org in several major cities hosting The Color Run Dream Tour, Presented by Lay’s® to help increase Rett syndrome awareness and support efforts to find a cure.

May
29
Tue
Ella Foard Golf Classic
May 29 @ 8:00 am – 1:00 pm
Jun
2
Sat
Run for Rett Olympia
Jun 2 @ 3:00 pm – 4:00 pm
Jun
8
Fri
Strollathon
Jun 8 @ 9:00 am – 10:00 am
Jul
10
Tue
Communication- Making it Count
Jul 10 @ 1:00 pm – 2:30 pm

Topic: Communication- Making it Count
Speaker: Judy Lariviere, M.Ed.,OTR/L, UCSF

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

Aug
7
Tue
U.S.-Russia Rett syndrome Cultural Exchange
Aug 7 @ 1:00 pm – 2:30 pm

Topic: U.S.-Russia Rett syndrome Cultural Exchange
Speaker: Olga Timutsa, President, Rett Syndrome Association of Russia, Mother to Katerina
Olga Timutsa will be visiting the U.S. as a guest of Rettsyndrome.org for a cultural exchange focused on diagnosis, care, and life for children and adults with Rett syndrome and their families. Hear Olga share about life in Russia with Rett syndrome and how our research and efforts have a global impact.

Click Here to View Video

Aug
14
Tue
Understanding Autonomic Dysfunction in Rett Syndrome
Aug 14 @ 1:00 pm – 2:30 pm

Topic: Understanding Autonomic Dysfunction in Rett Syndrome
Speaker: Jeff Neul, MD, PhD, Vanderbilt University

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording