Events

Oct
4
Sun
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14th Annual Minnesota Strollathon
Oct 4 @ 9:00 am

14th Annual Minnesota Strollathon

Join us for the 14th Annual Minnesota Strollathon!

Information & Registration

Oct
13
Tue
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RettEd: Clinical Trial Update
Oct 13 @ 1:00 pm

Please join Rettsyndrome.org on Tuesday, October 13, 2020 at 1:00pm Eastern Time (New York) for status updates on clinical trial and research enrollment opportunities in the U.S.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how we all have a role to play in research progress.

With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Oct
17
Sat
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13th Annual St. Louis Strollathon
Oct 17 @ 9:00 am

13th Annual St. Louis Strollathon

Dates: Saturday, October 17, 2020

Location: JCC St Louis, 2 Millstone Campus Drive, St Louis, MO 63146
Registration: 9am
Stroll: 10am
Event Chairs: Joyce Opinsky & Amy Kreher (stlstrollathon@gmail.com)

Information & Registration

Oct
24
Sat
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18th Annual SoCal Picnic & Strollathon
Oct 24 @ 9:00 am

18th Annual SoCal Picnic & Strollathon

Join us for the 18th Annual SoCal Picnic & Strollathon!

  • Date: October, 24th, 2020
  • Time: 12:00pm-4:00pm
  • Location: Whitter High School, 12417 East Philadelphia Street, Whittier CA 90601
  • Event Contact: Sherri Brady (562-619-0109 or mom2lcm@gmail.com)

Information & Registration

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1st Annual South Carolina Strollathon
Oct 24 @ 9:00 am

1st Annual South Carolina Strollathon

Join us for the 1st Annual South Carolina Strollathon!

Information & Registration

Oct
31
Sat
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11th Annual Florida Strollathon: Virtual Edition
Oct 31 @ 9:00 am

11th Annual Florida Strollathon: Virtual Edition

Join us for the 11th Annual Florida Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!

Date: October, 31st, 2020
Location: your neighborhood, walking trial or treadmill!
Event Contact: Jackie Ventura (978-500-2495 or jventura@rettsyndrome.org)

Information & Registration

Nov
7
Sat
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8th Annual San Antonio Strollathon
Nov 7 @ 9:00 am

8th Annual San Antonio Strollathon

Join us for the 8th Annual San Antonio Strollathon!

Information & Registration

Nov
10
Tue
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RettEd: Communication Guidelines and Workbook for Rett Syndrome feat. Theresa Bartolotta, PhD
Nov 10 @ 1:00 pm

Please join Rettsyndrome.org on Tuesday, November 10, 2020 at 1:00pm (EDT) to learn how to put the Communication in Rett Syndrome Guidelines and workbook into real-world practice with Theresa Bartolotta, PhD, CCC-SLP, Program for Research and Support for Rett Syndrome, Monmouth University, NJ; Speech-Language Pathologist, Tender Ones Therapy Services, Dacula, GA and co-author of these guidelines.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone involved. Join this webinar to learn how.

Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Dec
8
Tue
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What Do They See? Vision in Rett Syndrome
Dec 8 @ 1:00 pm

Join us Tuesday, December 8th, at 1:00 pm (EDT) to hear from Dr. Tim Benke about Cortical Visual Impairment (CVI) in Rett syndrome. Our loved ones with Rett syndrome often exhibit particular eye movements or gaze patterns. Is this a motor behavior or visual strategy? What do our children see? How do they process visual information?

Dr. Tim Benke is the Director of Research at the Neuroscience Institute at Children’s Hospital Colorado, where he is also the Medical Director of the Rett Clinic. He also serves as an investigator in Rett Syndrome Natural History Study and Rettsyndrome.org’s Medical Advisor.

Register now, and submit your questions. Pre-submitted relevant questions will be addressed, and there will be time for write-in questions during the session.

REGISTER

Our RettEd Webcasts are Free, but registration is required. RettEd Webcasts are recorded. When you register, you will receive a link to the recording within 1-2 days after the presentation.

Rettsyndrome.org is committed to standing with you today, to fighting to transform your tomorrow. Check out our other upcoming webcasts, as well as an incredible library of past webcasts on multiple Rett topics: www.rettsyndrome.org/education.