Events - International Rett Syndrome Foundation

Goals Fore Gracie @ Thousand Oaks Golf Club

Jul 8 @ 10:30 am

Date: Monday, July 8, 2024 Time: Registration 9 a.m. ET | Shotgun Start 10:30 a.m. ET Location: Thousand Oaks Golf Club (4100 Thousand Oaks Drive NE, Grand Rapids, MI 49525) The Visser Family is excited to host their 2nd annual Goals Fore Gracie Golf Outing inspired by their 5-year-old daughter, Gracie. Join us for a round of golf, lunch, raffle, after tournament cocktails, and more! INFORMATION & REGISTRATION

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Jul

Sat

POUND Out Rett @ IBEW Local 1

Tickets

Jul 13 @ 1:00 pm – 5:00 pm

Date: Saturday, July 13, 2024 Time: 12-4 p.m. Location: IBEW Local 1 (5850 Elizabeth Ave, St Louis, MO 63110) Channel your inner rockstar in POUND® - an exhilarating full body workout inspired by the infectious, energizing, and sweat-dripping fun of playing the drums. Designed for all fitness levels and easily modifiable, POUND® provides the perfect atmosphere for rockstars of all ages and abilities to let loose! Come rock out workout, enjoy refreshments, vendors, a silent auction, and more! Learn More & Register Today!

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Jul

Sat

Let’s Flamingle for a Cure @ Henmick Farm & Brewery

Tickets

Jul 20 @ 2:00 pm – 5:00 pm

Date: Saturday, July 20, 2024 Time: 2-5 p.m. ET Location: Henmick Farm & Brewery (4380 N Old State Rd, Delaware, OH 43015)

Join us for this FREE, family-friendly event in support of finding a cure for Rett syndrome. We will have raffles, a silent auction, a live auction (with items from our daughters living with Rett), live music, food trucks, a kids' area with crafts, games, and music! INFORMATION & REGISTRATION

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Sep

Sat

Raise a Glass Against Rett – Kansas City @ Olathe Community Center

Tickets

Sep 21 @ 5:00 pm – 8:00 pm

Date: Saturday, September 21, 2024 Time: 4-7 p.m. CT Location: Olathe Community Center (1205 E Kansas City Rd, Olathe, KS 66061) Raise a glass to a Saturday well-spent! Join us for this FREE, family-friendly event in support of finding treatments and a cure for Rett syndrome. We will have 50/50 raffle, a silent auction, DJ, food truck, Dunk Tank, a kids' area with crafts, games, and face painting! INFORMATION & REGISTRATION

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Oct

Fri

Warrior William Fishing Tournament @ Red Oak Resort & RV Park

Tickets

Oct 11 all-day

Date: Friday, October 11, 2024 Time: TBD Location: Imperial, MO

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Oct

Wed

Rhinegeist Beer for Humans Pint Night @ Rhinegeist Brewery

Tickets

Oct 16 all-day

Date: Wednesday, October 16, 2024 Time: TBD Location: Rhinegeist Brewery (1910 Elm St, Cincinnati, OH 45202) Sip for a cause! Each month, Rhinegeist highlights four local non-profit organizations that are brewing positive change in our community. Grab a pint on Wednesdays from 5-8 pm, receive a token with each pint purchase, explore each organization, and vote for your non-profit of choice by placing your token in their designated dropbox! You may also make a monetary donation in any dropbox. At the end of the month, each organization receives a donation based upon the amount of “votes” they receive, while the organization with the most votes receives a bonus. So grab your pals, grab a pint, and support our local non-profits! MORE INFORMATION

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Nov

Sun

Royal Rett Tea Party @ Watermark Country Club

Tickets

Nov 10 @ 12:30 pm

Date: Sunday, November 10, 2024 Time: 12:30 p.m. ET Location: Watermark Country Club (1600 Galbraith Ave SE, Grand Rapids, MI 49546) Join us for a magical afternoon honoring some of Michigan's Rett Royalty and featuring Disney characters from Olivia Grace & Company. The event includes photo and autograph opportunities plus a special gift for our princes and princesses. A fancy tea party luncheon is included with your ticket purchase. Cash bar optional. RESERVE YOUR SEAT!

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Raise a Glass for Rett – Houston @ Houston Country Club

Tickets

Nov 10 @ 6:00 pm – 10:00 pm

Date: Sunday November 10, 2024 Time: 5-9 p.m. CT Location: Houston Country Club (1 Potomac Dr, Houston, TX 77057) Get Ready to Raise your Glass! Join us for the 5th Annual Houston Raise a Glass for Rett Gala brought to you by the International Rett Syndrome Foundation (IRSF) and Johnson Supply. This year we will be at the Houston Country Club on Sunday, November 10th. We hope to exceed our goal of raising $185,000 for IRSF, and we’re grateful for your interest in supporting this important event.

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Nov

Sat

IRSF RettEd Day @ CHOP

Tickets

Nov 16 @ 9:00 am – 5:00 pm

Date: Saturday, November 16, 2024 Time: 9:00 a.m. - 5 p.m. ET (registration opens at 8:00a) Location: Children's Hospital of Philadelphia Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more. LEARN MORE & REGISTER

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May

Sat

Enchanted Dreams Fantasy Gala for Rett @ The Grove

Tickets

May 17 @ 4:00 pm

Date: Saturday, May 17, 2025 Time: 4 p.m. ET Location: The Grove in Newport, ME More information coming soon!

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July 2024 – May 2025 Jul 2024 – May 2025