Events

Oct
28
Sat
4th Annual Raise a Glass for Rett Gala @ Watch Virtually or at locations throughout the US
Oct 28 @ 8:00 pm – 9:00 pm
Date: Saturday, October 28, 2023 Time: 8-9 p.m. ET Location: Virtual Livestream + In-Person Viewing Parties across the US Join us for the 4th Annual Raise a Glass for Rett Gala, presented by Raising a Hand for Rett! GET VIRTUAL TICKETS Grab your commemorative beer or wine glass and join us for an evening of stories from your Rett community, inspiring updates on science and research advancements, and the opportunity to support Rett families all over the world. This special event will be streamed by thousands across the globe, either from one of our viewing parties or from the comfort of your home. Over the past two years, our donors, sponsors, and viewers have raised nearly $1M to empower families and accelerate research towards treatments and cures for Rett. Locations: For sponsorship opportunities or interest in hosting a viewing party in your city, please contact Tim Frank at [email protected].
Jun
18
Tue
2024 IRSF Rett Syndrome Scientific Meeting @ The Westin Westminster
Jun 18 – Jun 19 all-day
Date: June 18-19, 2024 Time: All Day Location: Westminster, Colorado LEARN MORE The research community is invited to join us in Colorado for the 2024 IRSF Rett Syndrome Scientific Meeting next June! Part of ASCEND 2024, the IRSF Rett Syndrome Scientific Meeting brings together scientists and researchers studying Rett syndrome and related areas from around the world. During this 2-day meeting, attendees representing academia, industry, and governmental agencies will share their latest research advances and discuss ways to leverage learning in the lab to be rapidly deployed in the clinic. The IRSF Rett Syndrome Scientific Meeting is the only annual, global, and comprehensive research meeting focused exclusively on Rett syndrome. Thank you to our sponsors: Presenting Sponsor: Platinum Sponsors:
Bronze Sponsors:
Anavex Life Sciences
DepYmed
Jul
8
Mon
Goals Fore Gracie @ Thousand Oaks Golf Club
Jul 8 @ 10:30 am
Date: Monday, July 8, 2024 Time: Registration 9 a.m. ET | Shotgun Start 10:30 a.m. ET Location: Thousand Oaks Golf Club (4100 Thousand Oaks Drive NE, Grand Rapids, MI 49525) The Visser Family is excited to host their 2nd annual Goals Fore Gracie Golf Outing inspired by their 5-year-old daughter, Gracie. Join us for a round of golf, lunch, raffle, after tournament cocktails, and more! INFORMATION & REGISTRATION
Jul
13
Sat
POUND Out Rett @ IBEW Local 1
Jul 13 @ 1:00 pm – 5:00 pm
Date: Saturday, July 13, 2024 Time: 12-4 p.m. Location: IBEW Local 1 (5850 Elizabeth Ave, St Louis, MO 63110) Channel your inner rockstar in POUND® - an exhilarating full body workout inspired by the infectious, energizing, and sweat-dripping fun of playing the drums. Designed for all fitness levels and easily modifiable, POUND® provides the perfect atmosphere for rockstars of all ages and abilities to let loose! Come rock out workout, enjoy refreshments, vendors, a silent auction, and more! Learn More & Register Today!
Jul
20
Sat
Let’s Flamingle for a Cure @ Henmick Farm & Brewery
Jul 20 @ 2:00 pm – 5:00 pm
Date: Saturday, July 20, 2024 Time: 2-5 p.m. ET Location: Henmick Farm & Brewery (4380 N Old State Rd, Delaware, OH 43015) Join us for this FREE, family-friendly event in support of finding a cure for Rett syndrome. We will have raffles, a silent auction, a live auction (with items from our daughters living with Rett), live music, food trucks, a kids' area with crafts, games, and music! INFORMATION & REGISTRATION
Sep
21
Sat
Raise a Glass Against Rett – Kansas City @ Olathe Community Center
Sep 21 @ 5:00 pm – 8:00 pm
Date: Saturday, September 21, 2024 Time: 4-7 p.m. CT Location: Olathe Community Center (1205 E Kansas City Rd, Olathe, KS 66061) Raise a glass to a Saturday well-spent! Join us for this FREE, family-friendly event in support of finding treatments and a cure for Rett syndrome. We will have 50/50 raffle, a silent auction, DJ, food truck, Dunk Tank, a kids' area with crafts, games, and face painting! INFORMATION & REGISTRATION
Oct
11
Fri
Warrior William Fishing Tournament
Oct 11 all-day
Date: Friday, October 11, 2024 Time: TBD Location: Imperial, MO More information coming soon!
Nov
10
Sun
Capes and Crowns @ Watermark Country Club
Nov 10 @ 12:00 pm
Date: Sunday, November 10, 2024 Time: 12 p.m. ET Location: Watermark Country Club (1600 Galbraith Ave SE, Grand Rapids, MI 49546) More information coming soon!
Raise a Glass for Rett – Houston @ Houston Country Club
Nov 10 @ 6:00 pm – 10:00 pm
Date: Sunday November 10, 2024 Time: 5-9 p.m. CT Location: Houston Country Club (1 Potomac Dr, Houston, TX 77057) More information coming soon!
May
17
Sat
Enchanted Dreams Fantasy Gala for Rett @ The Grove
May 17 @ 4:00 pm
Date: Saturday, May 17, 2025 Time: 4 p.m. ET Location: The Grove in Newport, ME More information coming soon!