Date: June 22-25, 2023
Location: Morgan’s Wonderland Accessible Theme Park (5223 David Edwards, San Antonio, TX 78233)
For Event Information & FAQs, CLICK HERE.
IRSF’s RettAway is a destination vacation for families to spend time together and build connections with other members of our Rett community. It’s not a conference – there are no meetings or educational presentations. It’s an exclusive opportunity for your family to have fun together in a location that understands the challenges and joys of caring for a loved one with Rett syndrome.
This year’s RettAway brings us back to Morgan’s Wonderland in San Antonio, Texas! Join us for a long weekend of fun in the sun at this accessible theme park, including an afternoon at Morgan’s Inspiration Island Splash Experience reserved just for Rett families. There will be ample time to catch up with friends new and old throughout the weekend or explore all the city has to offer. No matter where you are on your Rett journey, there will be activities, support, and bonds to be made at this June’s RettAway!
REGISTRATION & HOTEL INFORMATION
Already registered?
Make sure to RSVP “Going” on the Facebook event page to stay up to date on deadlines, information, and to make plans to connect with other families!
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Date: Saturday, August 5, 2023
Time: 9:30 a.m. – 4 p.m. PT
Location: Camp Arroyo (5535 Arroyo Rd, Livermore, CA 94550)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
Date: Saturday, September 9, 2023
Time: 9:00 a.m. – 5 p.m. CT (registration opens at 8:30a)
Location: Rett Syndrome & Related Disorders Clinic (Dallas, TX)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
Date: Saturday, September 9, 2023
Time: 10:00 a.m. – 2 p.m. Eastern
Location: Buffalo Creek Nature Park (154 Monroe Road, Sarver, PA 16055)
Event Chairs: Terre Gray and Kati Gray (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, September 9th, 2023
Time: 1:00 p.m. – 4 p.m. CT
Location: Yanney Heritage Park – ERC Building (2020 W 11th St, Kearney, NE 68845)
Event Chairs: Jacy Horst, Megan Ladenburger, & Elly Gullion (Contact Email)
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Sunday, September 10th, 2023
Time: 10:00 a.m. – 1 p.m. ET
Location: Drake Sports Park (6801 Drake Rd, West Bloomfield Township, MI 48322)
Event Chairs: Lisa Fenberg & Kate Ficano (Contact Email)
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, September 23, 2023
Time: 10:00 a.m. – 1 p.m. Eastern
Location: Crowder County Park (4709 Ten-Ten Road, Apex, NC 27539)
Event Chairs: Gwen Noecker (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, September 30, 2023
Time: 9:00 a.m. – 5 p.m. ET (registration opens at 8:30a)
Location: The Children’s Hospital at Montefiore (Bronx, New York)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
Date: Saturday, September 30, 2023
Time: 10:00 a.m. – 1 p.m. Eastern
Location: East Goshen Township Park (1661 Paoli Pike, West Chester, PA 19380)
Event Chairs: Siobhann Bennett (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Sunday, October 1st, 2023
Time: 1-4 p.m. CT
Location: Environmental Learning Center (13550 Dakota Ave S, Savage, MN 55378)
Event Chairs: Mary Kallstrom (Contact Email)
Save the date to WALK N’ ROLL with us!
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.