Join us for the 12th Annual New Jersey Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the Covid-19 pandemic, we will be going Virtual this year! We have some tricks up our sleeve to make this a fun & engaging event.
Date: Sunday, October 4th, 2020
Location: Your neighborhood, local walking trail or treadmill!
Follow us on Facebook for contests, event updates and more!
Event Chair: Leslie Greenfield (email@example.com)
Rush University Rett Clinic Town Hall, feat. Drs. Heydemann, Buhrfiend and Berry-Kravis
Date: Sat, Oct 10, 2020
Time: 11:00 PM – 12:30 PM
Please join us Saturday, October 10, 2020 at 11:00 am Central Time (Chicago) with Dr. Peter Heydemann, Dr. Colleen Buhrfiend, Dr. Elizabeth Berry-Kravis, and the leadership from Rettsyndrome.org (RSO) and the Rett Syndrome Association of Illinois (RSAI) for an encouraging update about clinical care recommendations and appointments; clinical trials; the research process; and family empowerment at this point in time. There is no fee to attend this Town Hall, but pre-registration is required.
There will be time for QA at the end of the presentation. We encourage you to submit your questions during Registration to enable our Speakers to best prepare their answers to address what’s on your mind in the time allowed. If a question comes to mind after you have Registered, you may email your question for any of the Presenters to Paige Nues at firstname.lastname@example.org
This live webcast will be especially helpful to caregivers trying to understand current state of medical appointments, treatment, clinical trials, and research at Rush University Medical Center.
Please join Rettsyndrome.org on Tuesday, October 13, 2020 at 1:00pm Eastern Time (New York) for status updates on clinical trial and research enrollment opportunities in the U.S.
Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how we all have a role to play in research progress.
With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
13th Annual St. Louis Virtual Strollathon
Dates: Saturday, October 17, 2020
Event Chairs: Joyce Opinsky & Amy Kreher (email@example.com)
7th Annual Raleigh Strollathon: Virtual Edition
Join us for the 7th Annual Raleigh Strollathon VIRTUALLY!
Please join us on Saturday, October 17th at 11am EST on Facebook for our ‘virtual’ event. Be sure to wear your past or present Stroll apparel and share photos on our FB page.
Follow our Facebook page for more info, contests and more!
Facebook page: https://www.facebook.com/NCIRSFStrollRaleigh/
Questions? Contact: Gwen Noecker (firstname.lastname@example.org) or (919) 426-5554.
Cincinnati Children’s Hospital Rett Clinic Town Hall Meeting, presented by Rettsyndrome.org
Date: Sat, Oct 17, 2020
Time: 12:00 PM – 1:30 PM EDT
Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family?
We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Saturday, October 17, 2020, at Noon – 1:30pm (ET).
Join us as Rettsyndrome.org and the Rett Clinic team at Cincinnati Children’s Hospital discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities.
Then during the last half hour, we’ll be taking your pre-submitted questions*.
Cincinnati Children’s Hospital: Dr. Shannon Standridge, medical director
Rettsyndrome.org: Paige Nues, host
11th Annual Florida Strollathon: Virtual Edition
Join us for the 11th Annual Florida Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!
Date: October, 31st, 2020
Location: your neighborhood, walking trial or treadmill!
Event Contact: Jackie Ventura (978-500-2495 or email@example.com)