Events

Oct
13
Tue
RettEd: Clinical Trial Update
Oct 13 @ 1:00 pm

Please join Rettsyndrome.org on Tuesday, October 13, 2020 at 1:00pm Eastern Time (New York) for status updates on clinical trial and research enrollment opportunities in the U.S.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how we all have a role to play in research progress.

With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Nov
10
Tue
RettEd: Communication Guidelines and Workbook for Rett Syndrome feat. Theresa Bartolotta, PhD
Nov 10 @ 1:00 pm

Please join Rettsyndrome.org on Tuesday, November 10, 2020 at 1:00pm (EDT) to learn how to put the Communication in Rett Syndrome Guidelines and workbook into real-world practice with Theresa Bartolotta, PhD, CCC-SLP, Program for Research and Support for Rett Syndrome, Monmouth University, NJ; Speech-Language Pathologist, Tender Ones Therapy Services, Dacula, GA and co-author of these guidelines.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone involved. Join this webinar to learn how.

Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Dec
8
Tue
RettEd: What Do They See? Vision in Rett Syndrome
Dec 8 @ 1:00 pm

Join us Tuesday, December 8th, at 1:00 pm (EDT) to hear from Dr. Tim Benke about Cortical Visual Impairment (CVI) in Rett syndrome. Our loved ones with Rett syndrome often exhibit particular eye movements or gaze patterns. Is this a motor behavior or visual strategy? What do our children see? How do they process visual information?

Dr. Tim Benke is the Director of Research at the Neuroscience Institute at Children’s Hospital Colorado, where he is also the Medical Director of the Rett Clinic. He also serves as an investigator in Rett Syndrome Natural History Study and Rettsyndrome.org’s Medical Advisor.

Register now, and submit your questions. Pre-submitted relevant questions will be addressed, and there will be time for write-in questions during the session.

REGISTER

Our RettEd Webcasts are Free, but registration is required. RettEd Webcasts are recorded. When you register, you will receive a link to the recording within 1-2 days after the presentation.

Rettsyndrome.org is committed to standing with you today, to fighting to transform your tomorrow. Check out our other upcoming webcasts, as well as an incredible library of past webcasts on multiple Rett topics: www.rettsyndrome.org/education.

 

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