Events

Sep
28
Sat
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Cincinnati Strollathon
Sep 28 @ 9:30 am

16th Annual Cincinnati Strollathon

Join us for the 16th Annual Cincinnati Strollathon

Date: Saturday, September 28th, 2019
Registration: 9:30am
Stroll: 11:00am
Location:  Voice of America Park, West Chester OH 45069
Directions :: Website 
Event Chairs: Brittney GibsonJim Magato, & Jennifer Magato

Registration & Information

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Maine Strollathon
Sep 28 @ 11:00 am

6th Annual Maine Strollathon

Join us for the 2019 Strollathon season!

Saturday September 28th, 2019
Registration: 11:00am, Stroll: 12:30pm
Location: Capitol Park, 33 Union Street, Augusta ME 04330
Event Chair: Evie Swan (evielynn6@gmail.com)

Registration & Information

Oct
6
Sun
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New Jersey Strollathon
Oct 6 @ 10:00 am

11th Annual New Jersey Strollathon

Join us for the 11th Annual New Jersey Strollathon!

Sunday, October 6, 2019
Registration: 10:00am
Stroll: 11:00am
Location: Maxwell Park, Hoboken NJ 07030
Event Chair: Leslie Greenfield (Leslieg417@gmail.com)

Registration & Information

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Minnesota Strollathon
Oct 6 @ 1:00 pm

Join us for the 13th Annual Minnesota Strollathon!

Sunday October 6th, 2019
Registration: 1:00pm, Stroll: 2:00pm
Location: Savage Environmental Learning Center
Website :: Directions
Event Chair: Mary Kallstrom (marykallstrom@q.com)

Registration & Information

Oct
15
Tue
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RettEd: Newly Published Communication Guidelines for Rett
Oct 15 @ 1:00 pm

Newly Published Communication Guidelines for Rett

Tuesday, October 15, 2019
1:00pm
Webinar

Please join us as Gill Townend, CertMRCSLT, M.Phil., B.Med.Sci.(Speech), Researcher and Augmentative & Alternative Communication Expert, Rett Expertise Centre Netherlands and Theresa Bartolotta, Ph.D., CCC-SLP, Professor, Department of Speech-Language Pathology, School of Education, Monmouth University, Monmouth University Graduate Center who will be introducing the development, final statement and recommendations of the largest body of evidence-based Communication guidelines to be published for Rett syndrome, work that was funded by Rettsyndrome.org and accomplished by a global team of experts.

Our presenters will also be sharing the accessible, user-friendly handbook version of the guidelines with recommendations of how to embed these at home, in the classroom, and in day programs. Our goal is to help empower you with strategies in the here and now while we accelerate work towards our collective hope for better treatments and ultimately a cure for Rett syndrome.

Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Registration & Information

Oct
19
Sat
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San Antonio Strollathon
Oct 19 @ 10:00 am

7th Annual San Antonio Strollathon

Join us for the 7th Annual San Antonio Strollathon!

Saturday October 19th, 2019
Registration: 10:00am, Stroll: 10:30am
Location: San Antonio Aquarium
Website :: Directions
Event Chair: Courtney Bernal

Registration & Information

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Tennessee Strollathon
Oct 19 @ 10:00 am

2nd Annual Tennessee Strollathon

Join us for the 2019 Strollathon season!

NEW DATE: Saturday October 19th, 2019
Location: Athens Park, Athens, TN
Registration: 10:00am, Stroll: 11:00am
Event Chair: Sally Teague (sallymteague@yahoo.com)

Registration & Information

Oct
24
Thu
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Rett Syndrome Ed Day: Communication and Literacy for Individuals with Complex Communication Needs
Oct 24 @ 9:00 am

WHEN | Thursday, October 24th, 2019
TIME | 9:00am
WHERE | Monmouth University: Directions | Website

Registration
Information

Nov
2
Sat
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URMC Rett Syndrome Family Education Day
Nov 2 @ 8:00 am

$10 registration fee per family including conference, breakfast and lunch.

Families and caregivers: don’t miss the opportunity to hear from leading doctors, researchers and service professionals in the Rett Syndrome field.

Information & Registration

For more information, email: delmonte.urmc.edu or RettSyndromeFamilyEducation@urmc.rochester.edu

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Florida Strollathon
Nov 2 @ 9:00 am

10th Annual Florida Strollathon

Join us for the 2019 Strollathon season!

November 2nd, 2019
Space Field of Dreams, West Melbourne FL
9:00am-1:30pm
Event Contact: Henry Perez (henrymperez@att.net)

Registration

Communications Guidelines Pop-up