16th Annual Cincinnati Strollathon
Join us for the 16th Annual Cincinnati Strollathon
Date: Saturday, September 28th, 2019
Registration: 9:30am
Stroll: 11:00am
Location: Voice of America Park, West Chester OH 45069
Directions :: Website
Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato
6th Annual Maine Strollathon
Join us for the 2019 Strollathon season!
Saturday September 28th, 2019
Registration: 11:00am, Stroll: 12:30pm
Location: Capitol Park, 33 Union Street, Augusta ME 04330
Event Chair: Evie Swan (evielynn6@gmail.com)
11th Annual New Jersey Strollathon
Join us for the 11th Annual New Jersey Strollathon!
Sunday, October 6, 2019
Registration: 10:00am
Stroll: 11:00am
Location: Maxwell Park, Hoboken NJ 07030
Event Chair: Leslie Greenfield (Leslieg417@gmail.com)
Join us for the 13th Annual Minnesota Strollathon!
Sunday October 6th, 2019
Registration: 1:00pm, Stroll: 2:00pm
Location: Savage Environmental Learning Center
Website :: Directions
Event Chair: Mary Kallstrom (marykallstrom@q.com)
7th Annual San Antonio Strollathon
Join us for the 7th Annual San Antonio Strollathon!
Saturday October 19th, 2019
Registration: 10:00am, Stroll: 10:30am
Location: San Antonio Aquarium
Website :: Directions
Event Chair: Courtney Bernal
2nd Annual Tennessee Strollathon
Join us for the 2019 Strollathon season!
NEW DATE: Saturday October 19th, 2019
Location: Athens Park, Athens, TN
Registration: 10:00am, Stroll: 11:00am
Event Chair: Sally Teague (sallymteague@yahoo.com)
$10 registration fee per family including conference, breakfast and lunch.
Families and caregivers: don’t miss the opportunity to hear from leading doctors, researchers and service professionals in the Rett Syndrome field.
For more information, email: delmonte.urmc.edu or RettSyndromeFamilyEducation@urmc.rochester.edu
10th Annual Florida Strollathon
Join us for the 2019 Strollathon season!
November 2nd, 2019
Space Field of Dreams, West Melbourne FL
9:00am-1:30pm
Event Contact: Henry Perez (henrymperez@att.net)
Please join us as Tim Benke, MD PhD, Director, Rett syndrome Clinic, Children’s Hospital Colorado, and Rettsyndrome.org Medical Advisor and Paige Nues, Director of Family Empowerment at Rettsyndrome.org to explore the clinical trials landscape outlook for 2020.
This live webcast will be especially helpful to caregivers who are wondering if participating in a clinical trial could be an option for their family and how to become research-ready. We will discuss what clinical trials are enrolling, about to enroll, or have closed enrollment. We will also discuss enrollment criteria, what it means to participate in a trial, and hear from a panelist of parent trailblazers whose children have participated in a Rett syndrome clinical trial to hear how they did it.
Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
RettEd Webcasts are a free resource designed to empower families affected by Rett syndrome and their care teams.
Please join us Tuesday, January 7, 2020 at 1:00 pm eastern for a presentation in Spanish from our bilingual Rett syndrome expert neurologist Dr. Mario Petersen, Section Chief, Neurodevelopmental Pediatrics and Endowed Chair, The Gerber Center for Infant Development and Nutrition, at Helen DeVos Children’s Hospital in Grand Rapids, MI, and recent past Medical Director of the Rett Syndrome clinic at Oregon Health Sciences University.
We will discuss ¿Qué es el síndrome de Rett?
This will be valuable for your Spanish-speaking loved ones who want to better understand Rett syndrome.
RettEd Webinars are a free resource designed to empower families affected by Rett syndrome and their care teams.