Events

Sep
28
Sat
Cincinnati Strollathon
Sep 28 @ 9:30 am

16th Annual Cincinnati Strollathon

Join us for the 16th Annual Cincinnati Strollathon

Date: Saturday, September 28th, 2019
Registration: 9:30am
Stroll: 11:00am
Location:  Voice of America Park, West Chester OH 45069
Directions :: Website 
Event Chairs: Brittney GibsonJim Magato, & Jennifer Magato

Registration & Information

Maine Strollathon
Sep 28 @ 11:00 am

6th Annual Maine Strollathon

Join us for the 2019 Strollathon season!

Saturday September 28th, 2019
Registration: 11:00am, Stroll: 12:30pm
Location: Capitol Park, 33 Union Street, Augusta ME 04330
Event Chair: Evie Swan (evielynn6@gmail.com)

Registration & Information

Oct
5
Sat
Gulf Coast Endurance Ride
Oct 5 @ 12:00 am

RRAA 2018 Launch

Gulf Coast Endurance Ride

Saturday, October 5th from Biloxi MS to Pensacola FL.

If you’re up for a challenging ride, consider joining KC Byers and friends for a century ride. KC is the creator of the Rett Ride Across America and step-dad to Katelyn with Rett. Last year he completed his second 2,600 mile ride across the country. Here are the details for this year’s Endurance Ride:
Start: Mary Mahoneys, 110 Rue Magnolia, Biloxi, MS 39530
Finish: WEAR TV, 4990 Mobile Highway, Pensacola FL 32506
114 mile with volunteer sag support & police escorts

Join for any length of the ride. Here are the multiple lag points where you can join.

Lag Point #1 (120 Miles): Meet at Mary Mahoneys, 110 Rue Magnolia, Biloxi, MS 39530
Lag Point #2 (90 miles): Meet at US Hwy 90 at the Missippi/Alabama line
Lag Point #3 (70 miles): Meet at Raceway 6709, 5455 Government Bvld, Mobile AL 36619 (Theodore exit junction I-10 and US 90)
Lag Point #4 (45 miles): Meet at Eastern Shore Bike Shop, 845 US-90 Ste 102, Daphne, AL 36526
Lag Point #5 (20 miles): Maw Maw’s Country Market, 26010 US Hwy 90, Robertsdale, AL Junction 90 & 87
END at: WEAR Channel 3, 4990 Mobile Hwy, Pensacola Fl
Ride in style with your RRAA gear- select a jersey, cycle shorts or both. Shop here.

Register TODAY!

OKC River Run
Oct 5 @ 8:00 am

OKC River Run

The goal of the OKC River Run is to raise support and awareness for Rett Syndrome, which is a genetic disorder that affects mainly girls and severely impairs “nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily.” The need for research is critical.

The OKC River Run is a USATF sanctioned and certified course along the picturesque Oklahoma River that provides a smooth, level, paved trail through downtown Oklahoma City free of vehicle traffic.

  • 6:30 a.m. to 8:30 a.m. – Packet Pick Up and onsite Registration.
  • 8:00 am. – Half Marathon* Start
  • 8:50 a.m. – 5K Start
  • 9:00 a.m. – 10K Start
  • 9:00 -11:00 a.m. – Awards Ceremony *See Details
All races will use chip timing for official race results.
All courses are USATF certified.

Registration & Information

Oct
6
Sun
New Jersey Strollathon
Oct 6 @ 10:00 am

11th Annual New Jersey Strollathon

Join us for the 11th Annual New Jersey Strollathon!

Sunday, October 6, 2019
Registration: 10:00am
Stroll: 11:00am
Location: Maxwell Park, Hoboken NJ 07030
Event Chair: Leslie Greenfield (Leslieg417@gmail.com)

Registration & Information

Minnesota Strollathon
Oct 6 @ 1:00 pm

Join us for the 13th Annual Minnesota Strollathon!

Sunday October 6th, 2019
Registration: 1:00pm, Stroll: 2:00pm
Location: Savage Environmental Learning Center
Website :: Directions
Event Chair: Mary Kallstrom (marykallstrom@q.com)

Registration & Information

Oct
19
Sat
San Antonio Strollathon
Oct 19 @ 10:00 am

7th Annual San Antonio Strollathon

Join us for the 7th Annual San Antonio Strollathon!

Saturday October 19th, 2019
Registration: 10:00am, Stroll: 10:30am
Location: San Antonio Aquarium
Website :: Directions
Event Chair: Courtney Bernal

Registration & Information

Tennessee Strollathon
Oct 19 @ 10:00 am

2nd Annual Tennessee Strollathon

Join us for the 2019 Strollathon season!

NEW DATE: Saturday October 19th, 2019
Location: Athens Park, Athens, TN
Registration: 10:00am, Stroll: 11:00am
Event Chair: Sally Teague (sallymteague@yahoo.com)

Registration & Information

Nov
2
Sat
Florida Strollathon
Nov 2 @ 9:00 am

10th Annual Florida Strollathon

Join us for the 2019 Strollathon season!

November 2nd, 2019
Space Field of Dreams, West Melbourne FL
9:00am-1:30pm
Event Contact: Henry Perez (henrymperez@att.net)

Registration

Dec
10
Tue
RettEd: Clinical Trial Enrollment Opportunities and Status Update
Dec 10 @ 1:00 pm

Please join us as Tim Benke, MD PhD, Director, Rett syndrome Clinic, Children’s Hospital Colorado, and Rettsyndrome.org Medical Advisor and Paige Nues, Director of Family Empowerment at Rettsyndrome.org to explore the clinical trials landscape outlook for 2020.

This live webcast will be especially helpful to caregivers who are wondering if participating in a clinical trial could be an option for their family and how to become research-ready. We will discuss what clinical trials are enrolling, about to enroll, or have closed enrollment. We will also discuss enrollment criteria, what it means to participate in a trial, and hear from a panelist of parent trailblazers whose children have participated in a Rett syndrome clinical trial to hear how they did it.

Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

RettEd Webcasts are a free resource designed to empower families affected by Rett syndrome and their care teams.

Register Today

Help us over power Rett