Events

Apr
6
Sat
Paint for a Cure
Apr 6 @ 5:00 pm – 9:00 pm
Apr
13
Sat
Fighting for Finley
Apr 13 @ 5:00 pm – 9:00 pm

All-You-Can-Eat Buffest & Open Bar and Silent Auction

May
11
Sat
RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time
May 11 all-day
May
17
Fri
The Great Rett Shootout
May 17 all-day
Jun
15
Sat
Siera’s Scramble
Jun 15 all-day
Charmed by Charity
Jun 15 @ 1:37 am – 2:37 am
Jun
22
Sat
Rettsyndrome.org Boston Ed Day
Jun 22 all-day

Rettsyndrome.org Ed Day hosted by TBD – Boston, MA

Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. – 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge.

REGISTER NOW!

 

Jul
28
Sun
Scramble for a Cure
Jul 28 all-day
Aug
8
Thu
Casting 4 A Cure
Aug 8 @ 9:00 am

Casting 4 A Cure is a loose band of compadres and compatriots who fly fish and fundraise to find a cure for Rett Syndrome. We have pulled together many of the fly fishing industry’s leaders and they have taken on the cause like it is their own. Come join us at one of the events or become a sponsor and help the thousands of girls affected by this crippling neurological disorder.

3 day single entry – $2,500.00
3 day team entry – $5,000.00

Location:
10 Warm Creek Ln.
Victor, ID 8345

Registration & Information