Events

Jan
8
Tue
Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey
Jan 8 @ 1:00 pm – 2:30 pm

Topic: Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey
Speaker: Tristen Dinkel, RN, DCH, Paige Nues, Sam Brant

Click to View Recording

Feb
12
Tue
Rett Syndrome Research Outlook: 2019 & Beyond
Feb 12 @ 1:00 pm – 2:30 pm

Topic: Rett Syndrome Research Outlook: 2019 & Beyond
Speaker: Steve Kaminsky, PhD

Click to View Recording

Mar
12
Tue
A Good Night’s Sleep To All
Mar 12 @ 1:00 pm – 2:30 pm

Topic: A Good Night’s Sleep To All
Speaker: Dr. Daniel Glaze, TCH, BCM

Click to View Recording

Apr
8
Mon
IEP Strategies for Successful Inclusion
Apr 8 @ 1:00 pm – 2:30 pm

Topic: IEP Strategies for Successful Inclusion
Speaker: Mickie McCool and Katie Busch

Click to View Recording

Apr
20
Sat
Golf Fore A Cure
Apr 20 @ 7:00 am – 4:00 pm
May
11
Sat
Adulthood: Living and Lifestyle Options
May 11 @ 1:00 pm – 2:30 pm

Speakers: Jenny Downs, PhD, Michelle Stahlhut, PT, PhD, Theresa Bartolotta, PhD, Donna Witzleben
Special Day/Time : Saturday, 11:00 AM EST

Register

May
13
Mon
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic
May 13 all-day

10th Annual Ella Foard Foundation For Rett Syndrome
Charity Golf Classic

May
21
Tue
14th Annual Samantha Corpus Golf Tournament
May 21 all-day

Other event contact: John Corpus – jdcorpus5@gmail.com

Jun
4
Tue
7th Annual Charamella Golf Tournament
Jun 4 @ 11:00 am – 5:00 pm

Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart.

11:00 AM – 12:00PM Golf Registration & Lunch
12:30 PM Shotgun Start
5:00 PM Doors Open for Dinner

* Lunch, 18 Holes of Golf, Driving Range, Tournament T-shirt, Dinner, Prizes, Raffle Table, Silent Auction

Sign up as a foursome or individual

PLAY GOLF

All sponsors will need to provide company logo/artwork via email to Deb McLaughlin markgolfrett@gmail.com.
All payments and artwork due April 19, 2019.

DINNER & SPONSORSHIP

If you can’t attend the event you can still make a general donation.

DONATE

Jun
11
Tue
Nutrition Strategies for Rett Syndrome
Jun 11 @ 1:00 pm – 2:30 pm

Topic: Nutrition Strategies for Rett Syndrome
Speaker: Suzanne Geerts, MS, RD, LD UAB

Register