Events

Date: Sunday, October 27, 2024 Time: 1-4 p.m. CT Location: Mary Heads Carter Park (2320 Heads Lane, Carrollton, TX 75006) Event Chairs: Vanessa Peace, Donna Williams, Lynne Buchwald & Leone Bromley (Contact Email) REGISTER TODAY! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised nearly $17M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Date: Saturday, November 2, 2024 Time: Registration starts at 10:30 a.m.  |  Stroll starts at 11:30 a.m. Location: West Melbourne, FL Event Chair: Henry Perez (Contact Email) REGISTER TODAY! Make sure to follow the event on Facebook to stay up to date! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Join us for this free community event supporting Chloe and all of our Rett angels. Rise Up for Rett will feature live music from local artists, a kid's zone, activity booths, vendors, food trucks, a silent auction, Rett expert presenters and much more. Donations will support local Rett families, Rett awareness and Rett research. We hope to see you there! Click on the link below for the official event flyer. Rise up for Rett flyer 2024

Join us for a night of dinner, drinks and dancing all while benefitting The Ella Foard Foundation and Rett syndrome! By attending Ella’s Evening of Hope, you will be helping to create a world without Rett for many others.

Date: Sunday, November 10, 2024 Time: 12:30 p.m. ET Location: Watermark Country Club (1600 Galbraith Ave SE, Grand Rapids, MI 49546) Join us for a magical afternoon honoring some of Michigan's Rett Royalty and featuring Disney characters from Olivia Grace & Company. The event includes photo and autograph opportunities plus a special gift for our princes and princesses. A fancy tea party luncheon is included with your ticket purchase.  Cash bar optional. RESERVE YOUR SEAT!  

Date: Sunday November 10, 2024 Time: 5-9 p.m. CT Location: Houston Country Club (1 Potomac Dr, Houston, TX 77057) Get Ready to Raise your Glass! Join us for the 5th Annual Houston Raise a Glass for Rett Gala brought to you by the International Rett Syndrome Foundation (IRSF) and Johnson Supply. This year we will be at the Houston Country Club on Sunday, November 10th. We hope to exceed our goal of raising $185,000 for IRSF, and we’re grateful for your interest in supporting this important event. 

Date: Saturday, November 16, 2024 Time: 9:00 a.m. - 5 p.m. ET (registration opens at 8:00a) Location: Children's Hospital of Philadelphia Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more. LEARN MORE & REGISTER

Date: Saturday, May 17, 2025 Time: 4 p.m. ET Location: The Grove in Newport, ME More information coming soon!