Events

Oct
15
Tue
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RettEd: Newly Published Communication Guidelines for Rett
Oct 15 @ 1:00 pm

Newly Published Communication Guidelines for Rett

Tuesday, October 15, 2019
1:00pm
Webinar

Please join us as Gill Townend, CertMRCSLT, M.Phil., B.Med.Sci.(Speech), Researcher and Augmentative & Alternative Communication Expert, Rett Expertise Centre Netherlands and Theresa Bartolotta, Ph.D., CCC-SLP, Professor, Department of Speech-Language Pathology, School of Education, Monmouth University, Monmouth University Graduate Center who will be introducing the development, final statement and recommendations of the largest body of evidence-based Communication guidelines to be published for Rett syndrome, work that was funded by Rettsyndrome.org and accomplished by a global team of experts.

Our presenters will also be sharing the accessible, user-friendly handbook version of the guidelines with recommendations of how to embed these at home, in the classroom, and in day programs. Our goal is to help empower you with strategies in the here and now while we accelerate work towards our collective hope for better treatments and ultimately a cure for Rett syndrome.

Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Registration & Information

Oct
19
Sat
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San Antonio Strollathon
Oct 19 @ 10:00 am

7th Annual San Antonio Strollathon

Join us for the 7th Annual San Antonio Strollathon!

Saturday October 19th, 2019
Registration: 10:00am, Stroll: 10:30am
Location: San Antonio Aquarium
Website :: Directions
Event Chair: Courtney Bernal

Registration & Information

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Tennessee Strollathon
Oct 19 @ 10:00 am

2nd Annual Tennessee Strollathon

Join us for the 2019 Strollathon season!

NEW DATE: Saturday October 19th, 2019
Location: Athens Park, Athens, TN
Registration: 10:00am, Stroll: 11:00am
Event Chair: Sally Teague (sallymteague@yahoo.com)

Registration & Information

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SoCal Picnic
Oct 19 @ 12:00 pm

WHEN | Saturday, October 19, 2019

12:00 PM – 4:00 PM

WHERE | Whittier High School 12417 East Philadelphia St Whittier, CA  90601 Directions

Visit the Event Page

Event Flyer

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A Night at the Races
Oct 19 @ 11:45 pm

A Night at the Races to Benefit Rett Syndrome

Chinese Auction
Door Prizes
$10 Horses

$10 Entry Fee
Tickets available at the door

Doors open at 6pm
Races start at 9pm

Oct
24
Thu
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Rett Syndrome Ed Day: Communication and Literacy for Individuals with Complex Communication Needs
Oct 24 @ 9:00 am

WHEN | Thursday, October 24th, 2019
TIME | 9:00am
WHERE | Monmouth University: Directions | Website

Registration
Information

Oct
26
Sat
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Raise a Glass Against Rett: Napa
Oct 26 @ 6:00 pm

Napa Event logo banner

Date: Saturday, October 26, 2019

Time: 6:00PM-10:00PM

Location: Tre Posti, 641 Main Street, St. Helena, CA 94574

Registration & Information

Nov
1
Fri
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Zumba for Rett Syndrome
Nov 1 @ 5:00 pm

Zumbathon Charity Event for Rett Syndrome

In Honor for Allison

Date: Friday, November 1st
Time: 5:00-7:30pm

Join us for an evening of instructed Zumba while raising money for Rettsyndrome.org. Admission is $10.

Contact Information:
Claudia Juarez
817-233-2189

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Raising A Hand
Nov 1 @ 6:00 pm

YOU CAN MAKE A DIFFERENCE

When: Friday, November 1, 2019

Where: Mercedes-Benz of The Woodlands
16917 Interstate 45 South
The Woodlands, TX 77385

Time: “Come and Go” from 6:00 p.m. to 9:00 p.m.

Parking: Valet Parking Available

Fare: Dosey Doe is providing wine and BBQ sliders at no cost

Entertainment: Acoustic show by Kevin and his son Coleton

Featured Art: 30 – 40 of Dave Clements’ and Kevin Black’s best music black and white photographs taken over the last decade will be available for purchase (tax-deductible donation to Rett Syndrome)

• Meet photographers Dave Clements & Kevin Black.
• View their photography that will be displayed in the show room.
• Enjoy some music memorabilia.
• Listen to a live music performance by Kevin Black and his son Coleton.
• Purchase a copy of their coffee table book Raising A Hand – Volume One. Pre-order order forms for Volume Two will be available.
• Learn about Rett syndrome and what the two photographers are doing to raise awareness for this rare disorder.
• Enjoy a Dosey Doe brisket slider and a glass of wine.
• Enjoy the collection of some of the finest automobiles in the world!

Finally if you can’t make it and still have not pre-ordered your copy of Raising A Hand – Volume Two, you can go to www.RaisingAHand.com and do so for $42.95 ($35 plus $7.95 shipping). Plus for an additional $25 donation you can get a signed copy of Volume One shipped to your home almost immediately.

Information Registration

Nov
2
Sat
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URMC Rett Syndrome Family Education Day
Nov 2 @ 8:00 am

$10 registration fee per family including conference, breakfast and lunch.

Families and caregivers: don’t miss the opportunity to hear from leading doctors, researchers and service professionals in the Rett Syndrome field.

Information & Registration

For more information, email: delmonte.urmc.edu or RettSyndromeFamilyEducation@urmc.rochester.edu