Events

Oct
17
Sat
7th Annual Raleigh Strollathon: Virtual Edition
Oct 17 @ 10:00 am

7th Annual Raleigh Strollathon: Virtual Edition

Join us for the 7th Annual Raleigh Strollathon VIRTUALLY!

Please join us on Saturday, October 17th at 11am EST on Facebook for our ‘virtual’ event. Be sure to wear your past or present Stroll apparel and share photos on our FB page.

Follow our Facebook page for more info, contests and more!

Facebook page: https://www.facebook.com/NCIRSFStrollRaleigh/

Questions? Contact: Gwen Noecker (comerga@yahoo.com) or (919) 426-5554.

Information & Registration

Cincinnati Children’s Hospital Rett Clinic Town Hall Meeting
Oct 17 @ 12:00 pm

Cincinnati Children’s Hospital Rett Clinic Town Hall Meeting, presented by Rettsyndrome.org

Date: Sat, Oct 17, 2020
Time: 12:00 PM – 1:30 PM EDT

Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family?

We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Saturday, October 17, 2020, at Noon – 1:30pm (ET).

Join us as Rettsyndrome.org and the Rett Clinic team at Cincinnati Children’s Hospital discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities.

Then during the last half hour, we’ll be taking your pre-submitted questions*.

Guest Presenters:
Cincinnati Children’s Hospital: Dr. Shannon Standridge, medical director
Rettsyndrome.org: Paige Nues, host

Information & Registration

Oct
24
Sat
18th Annual SoCal Virtual Picnic & Strollathon
Oct 24 all-day

18th Annual SoCal Virtual Picnic & Strollathon

Join us for the 18th Annual SoCal Picnic & Strollathon – Virtual Edition!

  • Date: October, 24th, 2020
  • Location: Virtual
  • Event Contact: Sherri Brady (562-619-0109 or mom2lcm@gmail.com)

Information & Registration

1st Annual South Carolina Virtual Strollathon
Oct 24 all-day

1st Annual South Carolina Virtual Strollathon

Join us for the 1st Annual South Carolina Virtual Strollathon!

Information & Registration

Raise a Glass Against Rett: Virtual Edition
Oct 24 @ 8:00 pm

Raise a Glass Against Rett: Virtual Edition


Date:Saturday, October 24th
Time: 8pm EST

Be inspired by stories from our community, hear our research update, and learn how you can help create a world without Rett. Join Rettsyndrome.org and families for a Virtual Gala this fall. And raise a glass to overpowering Rett!

Information & Registration

Oct
31
Sat
11th Annual Florida Strollathon: Virtual Edition
Oct 31 @ 9:00 am

11th Annual Florida Strollathon: Virtual Edition

Join us for the 11th Annual Florida Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!

Date: October, 31st, 2020
Location: your neighborhood, walking trial or treadmill!
Event Contact: Jackie Ventura (978-500-2495 or jventura@rettsyndrome.org)

Information & Registration

7th Annual Maine Strollathon: Virtual Edition
Oct 31 @ 9:00 am

7th Annual Maine Strollathon: Virtual Edition

Join us for the 7th Annual Maine Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!

Date: October 31, 2020
Location: your neighborhood, walking trial or treadmill!
Stroll Chair: Evie Swan (775-200-8788 or evielynn6@gmail.com)

Information & Registration

Nov
7
Sat
8th Annual San Antonio Virtual Strollathon
Nov 7 all-day

8th Annual San Antonio Virtual Strollathon

Join us for the 8th Annual San Antonio Virtual Strollathon!

  • Saturday November 7th, 2020
  • Location: Virtual
  • Event Chair: Ashley Cotham

Information & Registration

Nov
10
Tue
RettEd: Communication Guidelines and Workbook for Rett Syndrome feat. Theresa Bartolotta, PhD
Nov 10 @ 1:00 pm

Please join Rettsyndrome.org on Tuesday, November 10, 2020 at 1:00pm (EDT) to learn how to put the Communication in Rett Syndrome Guidelines and workbook into real-world practice with Theresa Bartolotta, PhD, CCC-SLP, Program for Research and Support for Rett Syndrome, Monmouth University, NJ; Speech-Language Pathologist, Tender Ones Therapy Services, Dacula, GA and co-author of these guidelines.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone involved. Join this webinar to learn how.

Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Dec
5
Sat
Montefiore Rett Clinic Town Hall Meeting
Dec 5 @ 3:00 pm

Tri-State Rett Syndrome Center Children’s Hospital at Montefiore Town Hall, feat. Dr. Djukic & More

Date: Sat, Dec 5, 2020
Time: 3:00 PM – 4:30 PM

Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family?

We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Saturday, December 5, 2020, at 3pm -4:30pm (ET).

Join us as Rettsyndrome.org, and the Rett Clinic team at Children’s Hospital at Montefiore discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities.

Information & Registration