Events

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January – July 2019 Jan – Jul 2019
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Jan
8
Tue
Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey
Tickets
Jan 8 @ 1:00 pm – 2:30 pm
Topic: Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey Speaker: Tristen Dinkel, RN, DCH, Paige Nues, Sam Brant Click to View Recording
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Categories: Education Slider Webinar
Feb
12
Tue
Rett Syndrome Research Outlook: 2019 & Beyond
Tickets
Feb 12 @ 1:00 pm – 2:30 pm
Topic: Rett Syndrome Research Outlook: 2019 & Beyond Speaker: Steve Kaminsky, PhD Click to View Recording
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Categories: Education Slider Webinar
Mar
12
Tue
A Good Night’s Sleep To All
Tickets
Mar 12 @ 1:00 pm – 2:30 pm
Topic: A Good Night’s Sleep To All Speaker: Dr. Daniel Glaze, TCH, BCM Click to View Recording
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Categories: Education Slider Webinar
Apr
8
Mon
IEP Strategies for Successful Inclusion
Tickets
Apr 8 @ 1:00 pm – 2:30 pm
Topic: IEP Strategies for Successful Inclusion Speaker: Mickie McCool and Katie Busch Click to View Recording
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Categories: Education Slider Webinar
Apr
12
Fri
Rett Spectrum 2nd Annual Family Education Symposium
Tickets
Apr 12 all-day
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Categories: Ed Day Education Slider
Apr
13
Sat
Emily’s Dri Tri and Spring Festival @ OTF Smyrna
Tickets
Apr 13 @ 1:30 pm – 3:30 pm
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Categories: Special Events - Run/Walk
Apr
27
Sat
Midwest Rett Syndrome Foundation Education Day
Tickets
Apr 27 all-day
Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)
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Categories: Ed Day Education Slider
Run for Rett @ Busse Woods, Grove #28 Elk Grove, Illinois, (Forest Preserve District of Cook County)
Tickets
Apr 27 @ 8:00 am – 11:00 am
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Categories: Special Events - Run/Walk
May
5
Sun
Live Rett Free @ E A Powell Elementary School
Tickets
May 5 all-day

5K Run, 1 Mile Fun Run & 1 Mile Walk or Stroll

To Benefit Rettsyndrome.org
For more information, please email Live Rett Free. You may also call Amanda at (419) 306-4234 or Karen at (419) 957-3875. Download the Offline Registration Form to register, sponsor or make a donation by check.
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Categories: Special Events - Run/Walk
May
11
Sat
Adulthood: Living and Lifestyle Options
Tickets
May 11 @ 1:00 pm – 2:30 pm
Speakers: Jenny Downs, PhD, Michelle Stahlhut, PT, PhD, Theresa Bartolotta, PhD, Donna Witzleben Special Day/Time : Saturday, 11:00 AM EST Register
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Categories: Education Slider Webinar
May
18
Sat
Philadelphia Ed Day
Tickets
May 18 all-day
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Categories: Ed Day Education Slider
Jun
11
Tue
Nutrition Strategies for Rett Syndrome
Tickets
Jun 11 @ 1:00 pm – 2:30 pm
Topic: Nutrition Strategies for Rett Syndrome Speaker: Suzanne Geerts, MS, RD, LD UAB Register
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Categories: Previous Webinars Webinar
Jun
22
Sat
Rettsyndrome.org Boston Ed Day
Tickets
Jun 22 all-day
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
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Categories: Ed Day Education Slider Special Events - Meetings/Symposiums
Jul
9
Tue
Genetics of Rett Syndrome and MECP2
Tickets
Jul 9 @ 1:00 pm – 2:30 pm
Topic: Genetics of Rett Syndrome and the MECP2 Gene Speakers: Steve Skinner, MD and Hannah Warren, LMSW Register
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Categories: Education Slider Webinar
Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day @ Camp Arroyo
Tickets
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!  
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Categories: Ed Day Education Slider Special Events - Meetings/Symposiums
January – July 2019 Jan – Jul 2019