Events

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April – October 2019 Apr – Oct 2019
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Apr
12
Fri
Rett Spectrum 2nd Annual Family Education Symposium
Tickets
Apr 12 all-day
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Categories: Ed Day Education Slider
Apr
20
Sat
Golf Fore A Cure @ Cleveland Heights Golf Course
Tickets
Apr 20 @ 7:00 am – 4:00 pm
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Categories: Special Events - Golf Tournaments
Apr
27
Sat
Midwest Rett Syndrome Foundation Education Day
Tickets
Apr 27 all-day
Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)
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Categories: Ed Day Education Slider
May
4
Sat
St. Louis Strollathon @ JCC,2
Tickets
May 4 @ 9:00 am – 10:00 am
Registration: 9:00am, Stroll: 10:00am Event Chairs: Joyce Opinsky & Amy Kreher
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Categories: Special Events - Strollathons
3rd Annual Iowa Strollathon @ Kinzler Construction
Tickets
May 4 @ 11:00 am – 2:00 pm
Co-Chairs: Kelly Zwald, Megan Hill Mitchum, Libby Stromer
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Categories: Special Events - Strollathons
May
5
Sun
Michigan Strollathon @ Drake Sport Park
Tickets
May 5 @ 10:00 am – 11:00 am
Registration: 10:00am, Stroll: 11:00am
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Categories: Special Events - Strollathons
May
11
Sat
RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time
Tickets
May 11 all-day
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Categories: Special Events - Meetings/Symposiums
May
13
Mon
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic @ Providence Country Club
Tickets
May 13 all-day
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic
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Categories: Special Events - Golf Tournaments
May
18
Sat
Philadelphia Ed Day
Tickets
May 18 all-day
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Categories: Ed Day Education Slider
May
21
Tue
14th Annual Samantha Corpus Golf Tournament @ Blackhawk Country Club
Tickets
May 21 all-day
Other event contact: John Corpus - [email protected]
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Categories: Special Events - Golf Tournaments
Jun
1
Sat
Maryland Strollathon @ Cecil Park Community Center
Tickets
Jun 1 @ 11:00 am – 12:00 pm
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Categories: Special Events - Strollathons
Jun
4
Tue
7th Annual Charamella Golf Tournament @ Westover Country Club
Tickets
Jun 4 @ 11:00 am – 5:00 pm
Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart. 11:00 AM - 12:00PM Golf Registration & Lunch 12:30 PM Shotgun Start 5:00 PM Doors Open for Dinner * Lunch, 18 Holes of Golf, Driving Range, Tournament T-shirt, Dinner, Prizes, Raffle Table, Silent Auction

Sign up as a foursome or individual

PLAY GOLF All sponsors will need to provide company logo/artwork via email to Deb McLaughlin [email protected]. All payments and artwork due April 19, 2019. DINNER & SPONSORSHIP
If you can't attend the event you can still make a general donation. DONATE
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Categories: Special Events - Golf Tournaments
Jun
22
Sat
Rettsyndrome.org Boston Ed Day
Tickets
Jun 22 all-day
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
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Categories: Ed Day Education Slider Special Events - Meetings/Symposiums
Jun
28
Fri
Rip it for Rett
Tickets
Jun 28 @ 7:00 am – 4:00 pm
Join us for a great time supporting a great cause, we hope to see you on June 28, 2019! The Rip it for Rett, hockey themed golf tournament is a blast, a great round of golf on a great course with really awesome people.
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Categories: Special Events - Golf Tournaments
Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day @ Camp Arroyo
Tickets
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!  
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Categories: Ed Day Education Slider Special Events - Meetings/Symposiums
Aug
2
Fri
Northwest Rett Syndrome Foundation Education Day @ Best Western Plus- Hood River Inn
Tickets
Aug 2 @ 9:00 am – Aug 4 @ 12:00 pm
2019 Family Conference of the Northwest Rett Syndrome Association
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Categories: Ed Day
Aug
31
Sat
Pennsylvania Strollathon @ Millvale Riverfront Park
Tickets
Aug 31 @ 9:00 am

6th Annual Pennsylvania Strollathon

Join us for the 6th Annual Pennsylvania Strollathon Saturday August 31st, 2019 Registration: 9:00am, Stroll: 10:15am Location: Millvale Riverfront Park, Millvale PA? Directions :: Website  Event Chair: Christina Dean ([email protected]) & Jennifer Langzettel ([email protected]) Registration & Information
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Categories: Special Events - Strollathons
Sep
7
Sat
Chicago Strollathon & Picnic @ Kankanee State Park
Tickets
Sep 7 @ 12:00 pm

13th Annual Chicago Strollathon

Join us for the 13th Annual Chicago Strollathon! Saturday September 7th, 2019 When: 11:00am Location: Kankanee State Park Map ll Directions Event Chair: Misty Gruenes ([email protected]) Visit the Event page
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Categories: Special Events - Strollathons
Nebraska Strollathon @ Yanney Park
Tickets
Sep 7 @ 1:00 pm

8th Annual Nebraska Strollathon

Join us for the 8th Annual Nebraska Strollathon Saturday, September 7th 2019 Registration: 1:00pm, Stroll: 2:00pm Location: Yanney Park, 2020 W 11th St, Kearney, NE 68845 Rotary Shelter by the Splash pad Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion Registration & Information
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Categories: Special Events - Strollathons
Sep
22
Sun
Portland Strollathon @ Rose Quarter
Tickets
Sep 22 @ 1:00 pm

14th Annual Portland Strollathon

Join us for the 14th Annual Portland Strollathon Sunday, September 22nd Registration: 1:00pm, Stroll: 2:30pm Location: Rose Quarter, Portland OR Directions :: Website Event Chair: Lacey & Leigh Calvert  Registration & Information
 
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Categories: Special Events - Strollathons
Sep
27
Fri
European Rett Syndrome Conference
Tickets
Sep 27 all-day
The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems. The purpose of Rett Finland  is to support families with Rett's syndrome diagnosed child. The Association has about 100 members. For more information on the association's activities, visit the association's website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland Registration & Information
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Categories: Special Events - Meetings/Symposiums
Sep
28
Sat
European Rett Syndrome Conference
Tickets
Sep 28 all-day
The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems. The purpose of Rett Finland  is to support families with Rett's syndrome diagnosed child. The Association has about 100 members. For more information on the association's activities, visit the association's website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland Registration & Information
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Categories: Special Events - Meetings/Symposiums
Cincinnati Strollathon @ Voice of America Park
Tickets
Sep 28 @ 9:30 am

16th Annual Cincinnati Strollathon

Join us for the 16th Annual Cincinnati Strollathon Date: Saturday, September 28th, 2019 Registration: 9:30am Stroll: 11:00am Location:  Voice of America Park, West Chester OH 45069 Directions :: Website  Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato Registration & Information
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Categories: Special Events - Strollathons
Maine Strollathon @ Capitol Park
Tickets
Sep 28 @ 11:00 am

6th Annual Maine Strollathon

Join us for the 2019 Strollathon season! Saturday September 28th, 2019 Registration: 11:00am, Stroll: 12:30pm Location: Capitol Park, 33 Union Street, Augusta ME 04330 Event Chair: Evie Swan ([email protected]) Registration & Information
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Categories: Special Events - Strollathons
Oct
6
Sun
New Jersey Strollathon @ Maxwell Park
Tickets
Oct 6 @ 10:00 am

11th Annual New Jersey Strollathon

Join us for the 11th Annual New Jersey Strollathon! Sunday, October 6, 2019 Registration: 10:00am Stroll: 11:00am Location: Maxwell Park, Hoboken NJ 07030 Event Chair: Leslie Greenfield ([email protected]) Registration & Information
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Categories: Special Events - Strollathons
Minnesota Strollathon @ Savage Environmental Learning Center
Tickets
Oct 6 @ 1:00 pm
Join us for the 13th Annual Minnesota Strollathon! Sunday October 6th, 2019 Registration: 1:00pm, Stroll: 2:00pm Location: Savage Environmental Learning Center Website :: Directions Event Chair: Mary Kallstrom ([email protected]) Registration & Information
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Categories: Special Events - Strollathons
Oct
19
Sat
San Antonio Strollathon @ San Antonio Aquarium
Tickets
Oct 19 @ 10:00 am

7th Annual San Antonio Strollathon

Join us for the 7th Annual San Antonio Strollathon! Saturday October 19th, 2019 Registration: 10:00am, Stroll: 10:30am Location: San Antonio Aquarium Website :: Directions Event Chair: Courtney Bernal Registration & Information
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Categories: Special Events - Strollathons
April – October 2019 Apr – Oct 2019