Events

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April – September 2019 Apr – Sep 2019
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Apr
12
Fri
Rett Spectrum 2nd Annual Family Education Symposium
Tickets
Apr 12 all-day
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Categories: Ed Day Education Slider
Apr
27
Sat
Midwest Rett Syndrome Foundation Education Day
Tickets
Apr 27 all-day
Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)
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Categories: Ed Day Education Slider
May
4
Sat
St. Louis Strollathon @ JCC,2
Tickets
May 4 @ 9:00 am – 10:00 am
Registration: 9:00am, Stroll: 10:00am Event Chairs: Joyce Opinsky & Amy Kreher
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Categories: Special Events - Strollathons
3rd Annual Iowa Strollathon @ Kinzler Construction
Tickets
May 4 @ 11:00 am – 2:00 pm
Co-Chairs: Kelly Zwald, Megan Hill Mitchum, Libby Stromer
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Categories: Special Events - Strollathons
May
5
Sun
Michigan Strollathon @ Drake Sport Park
Tickets
May 5 @ 10:00 am – 11:00 am
Registration: 10:00am, Stroll: 11:00am
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Categories: Special Events - Strollathons
May
11
Sat
RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time
Tickets
May 11 all-day
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Categories: Special Events - Meetings/Symposiums
May
18
Sat
Philadelphia Ed Day
Tickets
May 18 all-day
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Categories: Ed Day Education Slider
Jun
1
Sat
Maryland Strollathon @ Cecil Park Community Center
Tickets
Jun 1 @ 11:00 am – 12:00 pm
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Categories: Special Events - Strollathons
Jun
22
Sat
Rettsyndrome.org Boston Ed Day
Tickets
Jun 22 all-day
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
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Categories: Ed Day Education Slider Special Events - Meetings/Symposiums
Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day @ Camp Arroyo
Tickets
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!  
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Categories: Ed Day Education Slider Special Events - Meetings/Symposiums
Aug
2
Fri
Northwest Rett Syndrome Foundation Education Day @ Best Western Plus- Hood River Inn
Tickets
Aug 2 @ 9:00 am – Aug 4 @ 12:00 pm
2019 Family Conference of the Northwest Rett Syndrome Association
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Categories: Ed Day
Aug
27
Tue
RettEd: Taking Care of the Caregiver
Tickets
Aug 27 @ 1:00 pm
Sarika Peters, PhD, , Assoc. Professor of Pediatrics and Psychiatry & Behavioral Sciences, Vanderbilt Kennedy Center Marie Bateh, Physical Therapist and parent will explore specific domains as a framework to consider important issues and creative options for taking care of ourselves to ensure we have the energy, mindset and health needed to care for our loved one with Rett syndrome. Our goal is to help you frame an empowered life for yourself today, while we pursue our collective Hope for better treatments and ultimately a cure for Rett syndrome. Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session. Visit www.rettsyndrome.org/RettEd for additional 2019 webcast topics, and to access recording links from past webcasts and associated QA documents. RettEd is a monthly series featuring expert Speakers on Rett-related research and care topics, hosted by Rettsyndrome.org, to help pave your personal pathway to empowerment. Registration & Information
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Categories: Education Slider Webasts
Aug
31
Sat
Pennsylvania Strollathon @ Millvale Riverfront Park
Tickets
Aug 31 @ 9:00 am

6th Annual Pennsylvania Strollathon

Join us for the 6th Annual Pennsylvania Strollathon Saturday August 31st, 2019 Registration: 9:00am, Stroll: 10:15am Location: Millvale Riverfront Park, Millvale PA? Directions :: Website  Event Chair: Christina Dean ([email protected]) & Jennifer Langzettel ([email protected]) Registration & Information
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Categories: Special Events - Strollathons
Sep
7
Sat
Chicago Strollathon & Picnic @ Kankanee State Park
Tickets
Sep 7 @ 12:00 pm

13th Annual Chicago Strollathon

Join us for the 13th Annual Chicago Strollathon! Saturday September 7th, 2019 When: 11:00am Location: Kankanee State Park Map ll Directions Event Chair: Misty Gruenes ([email protected]) Visit the Event page
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Categories: Special Events - Strollathons
Nebraska Strollathon @ Yanney Park
Tickets
Sep 7 @ 1:00 pm

8th Annual Nebraska Strollathon

Join us for the 8th Annual Nebraska Strollathon Saturday, September 7th 2019 Registration: 1:00pm, Stroll: 2:00pm Location: Yanney Park, 2020 W 11th St, Kearney, NE 68845 Rotary Shelter by the Splash pad Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion Registration & Information
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Categories: Special Events - Strollathons
Sep
22
Sun
Portland Strollathon @ Rose Quarter
Tickets
Sep 22 @ 1:00 pm

14th Annual Portland Strollathon

Join us for the 14th Annual Portland Strollathon Sunday, September 22nd Registration: 1:00pm, Stroll: 2:30pm Location: Rose Quarter, Portland OR Directions :: Website Event Chair: Lacey & Leigh Calvert  Registration & Information
 
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Categories: Special Events - Strollathons
April – September 2019 Apr – Sep 2019