Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence
Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.
WHEN | Saturday, July 20, 2019
WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550
TIME | 9:00a.m. – 4:00p.m. (please arrive at 8:30a.m.)
Fee: $10/per person. Diagnosed children are FREE.
Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge.
6th Annual Pennsylvania Strollathon
Join us for the 6th Annual Pennsylvania Strollathon
Saturday August 31st, 2019
Registration: 9:00am, Stroll: 10:15am
Location: Millvale Riverfront Park, Millvale PA?
Directions :: Website
Event Chair: Christina Dean (christina.dean13@yahoo.com) & Jennifer Langzettel (langzettelj@duq.edu)
13th Annual Chicago Strollathon
Join us for the 13th Annual Chicago Strollathon!
Saturday September 7th, 2019
When: 11:00am
Location: Kankanee State Park
Map ll Directions
Event Chair: Misty Gruenes (gruenesmisty@gmail.com)
8th Annual Nebraska Strollathon
Join us for the 8th Annual Nebraska Strollathon
Saturday, September 7th 2019
Registration: 1:00pm, Stroll: 2:00pm
Location: Yanney Park, 2020 W 11th St, Kearney, NE 68845
Rotary Shelter by the Splash pad
Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion
14th Annual Portland Strollathon
Join us for the 14th Annual Portland Strollathon
Sunday, September 22nd
Registration: 1:00pm, Stroll: 2:30pm
Location: Rose Quarter, Portland OR
Directions :: Website
Event Chair: Lacey & Leigh Calvert
The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems.
The purpose of Rett Finland is to support families with Rett’s syndrome diagnosed child. The Association has about 100 members. For more information on the association’s activities, visit the association’s website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland
The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems.
The purpose of Rett Finland is to support families with Rett’s syndrome diagnosed child. The Association has about 100 members. For more information on the association’s activities, visit the association’s website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland
16th Annual Cincinnati Strollathon
Join us for the 16th Annual Cincinnati Strollathon
Date: Saturday, September 28th, 2019
Registration: 9:30am
Stroll: 11:00am
Location: Voice of America Park, West Chester OH 45069
Directions :: Website
Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato
6th Annual Maine Strollathon
Join us for the 2019 Strollathon season!
Saturday September 28th, 2019
Registration: 11:00am, Stroll: 12:30pm
Location: Capitol Park, 33 Union Street, Augusta ME 04330
Event Chair: Evie Swan (evielynn6@gmail.com)
11th Annual New Jersey Strollathon
Join us for the 11th Annual New Jersey Strollathon!
Sunday, October 6, 2019
Registration: 10:00am
Stroll: 11:00am
Location: Maxwell Park, Hoboken NJ 07030
Event Chair: Leslie Greenfield (Leslieg417@gmail.com)