Events

Rett Syndrome Research Outlook: 2019 & Beyond

Feb 12 @ 1:00 pm – 2:30 pm

Topic: Rett Syndrome Research Outlook: 2019 & Beyond Speaker: Steve Kaminsky, PhD Click to View Recording

Categories: Education Slider Webinar

Mar

A Good Night’s Sleep To All

Mar 12 @ 1:00 pm – 2:30 pm

Topic: A Good Night’s Sleep To All Speaker: Dr. Daniel Glaze, TCH, BCM Click to View Recording

Categories: Education Slider Webinar

Mon

IEP Strategies for Successful Inclusion

Apr 8 @ 1:00 pm – 2:30 pm

Topic: IEP Strategies for Successful Inclusion Speaker: Mickie McCool and Katie Busch Click to View Recording

Categories: Education Slider Webinar

Fri

Rett Spectrum 2nd Annual Family Education Symposium

Apr 12 all-day

Categories: Ed Day Education Slider

Emily’s Dri Tri and Spring Festival @ OTF Smyrna

Apr 13 @ 1:30 pm – 3:30 pm

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Categories: Special Events - Run/Walk

Midwest Rett Syndrome Foundation Education Day

Apr 27 all-day

Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)

Categories: Ed Day Education Slider

Run for Rett @ Busse Woods, Grove #28 Elk Grove, Illinois, (Forest Preserve District of Cook County)

Apr 27 @ 8:00 am – 11:00 am

Categories: Special Events - Run/Walk

May

Sun

Live Rett Free @ E A Powell Elementary School

May 5 all-day

5K Run, 1 Mile Fun Run & 1 Mile Walk or Stroll

To Benefit Rettsyndrome.org

For more information, please email Live Rett Free. You may also call Amanda at (419) 306-4234 or Karen at (419) 957-3875. Download the Offline Registration Form to register, sponsor or make a donation by check.

Categories: Special Events - Run/Walk

May

Adulthood: Living and Lifestyle Options

May 11 @ 1:00 pm – 2:30 pm

Speakers: Jenny Downs, PhD, Michelle Stahlhut, PT, PhD, Theresa Bartolotta, PhD, Donna Witzleben Special Day/Time : Saturday, 11:00 AM EST Register

Categories: Education Slider Webinar

May

Philadelphia Ed Day

May 18 all-day

Categories: Ed Day Education Slider

Jun

Nutrition Strategies for Rett Syndrome

Jun 11 @ 1:00 pm – 2:30 pm

Topic: Nutrition Strategies for Rett Syndrome Speaker: Suzanne Geerts, MS, RD, LD UAB Register

Categories: Previous Webinars Webinar

Jun

Rettsyndrome.org Boston Ed Day

Jun 22 all-day

Rettsyndrome.org Ed Day hosted by TBD – Boston, MA

Categories: Ed Day Education Slider Special Events - Meetings/Symposiums

Jul

Genetics of Rett Syndrome and MECP2

Jul 9 @ 1:00 pm – 2:30 pm

Topic: Genetics of Rett Syndrome and the MECP2 Gene Speakers: Steve Skinner, MD and Hannah Warren, LMSW Register

Categories: Education Slider Webinar

Jul

Rettsyndrome.org Bay Area Ed Day @ Camp Arroyo

Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!

Categories: Ed Day Education Slider Special Events - Meetings/Symposiums

Aug

Running for Rett Syndrome 5K