Events

Apr
6
Sat
Paint for a Cure @ De'borah's Jazz Cafe
Apr 6 @ 5:00 pm – 9:00 pm
Apr
13
Sat
Emily’s Dri Tri and Spring Festival @ OTF Smyrna
Apr 13 @ 1:30 pm – 3:30 pm
Fighting for Finley
Apr 13 @ 5:00 pm – 9:00 pm
All-You-Can-Eat Buffest & Open Bar and Silent Auction
Apr
20
Sat
Golf Fore A Cure @ Cleveland Heights Golf Course
Apr 20 @ 7:00 am – 4:00 pm
Apr
27
Sat
Run for Rett @ Busse Woods, Grove #28 Elk Grove, Illinois, (Forest Preserve District of Cook County)
Apr 27 @ 8:00 am – 11:00 am
May
4
Sat
St. Louis Strollathon @ JCC,2
May 4 @ 9:00 am – 10:00 am
Registration: 9:00am, Stroll: 10:00am Event Chairs: Joyce Opinsky & Amy Kreher
3rd Annual Iowa Strollathon @ Kinzler Construction
May 4 @ 11:00 am – 2:00 pm
Co-Chairs: Kelly Zwald, Megan Hill Mitchum, Libby Stromer
May
5
Sun
Live Rett Free @ E A Powell Elementary School
May 5 all-day

5K Run, 1 Mile Fun Run & 1 Mile Walk or Stroll


To Benefit Rettsyndrome.org
For more information, please email Live Rett Free. You may also call Amanda at (419) 306-4234 or Karen at (419) 957-3875. Download the Offline Registration Form to register, sponsor or make a donation by check.
Michigan Strollathon @ Drake Sport Park
May 5 @ 10:00 am – 11:00 am
Registration: 10:00am, Stroll: 11:00am
May
11
Sat
RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time
May 11 all-day
May
13
Mon
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic @ Providence Country Club
May 13 all-day
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic
May
17
Fri
The Great Rett Shootout @ Blackwood Gun Club
May 17 all-day
May
21
Tue
14th Annual Samantha Corpus Golf Tournament @ Blackhawk Country Club
May 21 all-day
Other event contact: John Corpus - [email protected]
Jun
1
Sat
Maryland Strollathon @ Cecil Park Community Center
Jun 1 @ 11:00 am – 12:00 pm
Jun
4
Tue
7th Annual Charamella Golf Tournament @ Westover Country Club
Jun 4 @ 11:00 am – 5:00 pm
Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart. 11:00 AM - 12:00PM Golf Registration & Lunch 12:30 PM Shotgun Start 5:00 PM Doors Open for Dinner * Lunch, 18 Holes of Golf, Driving Range, Tournament T-shirt, Dinner, Prizes, Raffle Table, Silent Auction

Sign up as a foursome or individual

PLAY GOLF All sponsors will need to provide company logo/artwork via email to Deb McLaughlin [email protected]. All payments and artwork due April 19, 2019. DINNER & SPONSORSHIP
If you can't attend the event you can still make a general donation. DONATE
Jun
15
Sat
Siera’s Scramble @ Maple Creek Golf Club
Jun 15 all-day
Charmed by Charity
Jun 15 @ 1:37 am – 2:37 am
Jun
22
Sat
Rettsyndrome.org Boston Ed Day
Jun 22 all-day
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
Jun
28
Fri
Rip it for Rett
Jun 28 @ 7:00 am – 4:00 pm
Join us for a great time supporting a great cause, we hope to see you on June 28, 2019! The Rip it for Rett, hockey themed golf tournament is a blast, a great round of golf on a great course with really awesome people.
Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day @ Camp Arroyo
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!  
Jul
28
Sun
Scramble for a Cure @ Hawk’s Eye Golf Course
Jul 28 all-day