Please join us Tuesday, September 10th at 1:00 pm eastern with Huda Y. Zoghbi, M.D., Director, Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital; Baylor College of Medicine as we journey from discovery of the Rett syndrome disease-causing MECP2 gene to where that discovery and subsequent learnings have taken us to today.
This live webinar is intended to provide hope and inspiration to caregivers and families. Our goal is to help you frame our collective Hope for better treatments and ultimately a cure for Rett syndrome while empowering you with strategies in the here and now. Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session. Visit www.rettsyndrome.org/RettEd for additional 2019 webinar topics, and to access recording links from past webinars and associated QA documents. RettEd is a monthly series featuring expert Speakers on Rett-related research and care topics, hosted by Rettsyndrome.org, to help pave your personal pathway to empowerment
WHEN | Saturday, September 14th, 2019
TIME | 3:00pm-7:00pm
WHERE | Austins Bar & Grill: Directions | Website
Sunday, September 29, 2019
Loading Dock
2400 Kettner Blvd, #110
San Diego, CA 92101
Online ticket sales end Friday, 9/27 at 9 p.m. PST.
4:00 p.m. to 9 p.m.
We’re excited to invite you to San Diego’s very first Reach for a Cure – Football & Fun benefitting Rettsyndrome.org. This entertaining event is designed to raise funds for a cure for Rett syndrome while having lots of fun at the same time.
Enjoy Sunday football, beer and a chance to connect with others who share a passion to create a world without Rett. We’ll have a silent auction full of great items – perfect time to get holiday gifts, or something for yourself!
View sponsorship document opportunities
All proceeds from sponsorships, donations, and tickets goes to Rettsyndrome.org, the longest-standing Rett syndrome research and family empowerment organization.
Join us for the 3rd Annual Purple Pumpkin Party!
The Purple Pumpkin Party to benefit the Scarlett Parks Foundation. This signifies that, in honor of their granddaughter Scarlett Parks, Don and Jodi Searcy will be conducting a fundraising event, the “Purple Pumpkin Party”. The event will take place October 5th, 2019 at the International Agri-Center in Tulare CA.
The Purple Pumpkin Party will be a celebration of a community coming together to help raise awareness and money to find a cure for Rett syndrome, consisting of dinner, entertainment, an auction, silent auction and many other fun items to bid on to help raise money needed to help find a cure.
Newly Published Communication Guidelines for Rett
Tuesday, October 15, 2019
1:00pm
Webinar
Please join us as Gill Townend, CertMRCSLT, M.Phil., B.Med.Sci.(Speech), Researcher and Augmentative & Alternative Communication Expert, Rett Expertise Centre Netherlands and Theresa Bartolotta, Ph.D., CCC-SLP, Professor, Department of Speech-Language Pathology, School of Education, Monmouth University, Monmouth University Graduate Center who will be introducing the development, final statement and recommendations of the largest body of evidence-based Communication guidelines to be published for Rett syndrome, work that was funded by Rettsyndrome.org and accomplished by a global team of experts.
Our presenters will also be sharing the accessible, user-friendly handbook version of the guidelines with recommendations of how to embed these at home, in the classroom, and in day programs. Our goal is to help empower you with strategies in the here and now while we accelerate work towards our collective hope for better treatments and ultimately a cure for Rett syndrome.
Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
WHEN | Saturday, October 19, 2019
12:00 PM – 4:00 PM
WHERE | Whittier High School 12417 East Philadelphia St Whittier, CA 90601 Directions
A Night at the Races to Benefit Rett Syndrome
Chinese Auction
Door Prizes
$10 Horses
$10 Entry Fee
Tickets available at the door
Doors open at 6pm
Races start at 9pm
WHEN | Thursday, October 24th, 2019
TIME | 9:00am
WHERE | Monmouth University: Directions | Website
Date: Saturday, October 26, 2019
Time: 6:00PM-10:00PM
Location: Tre Posti, 641 Main Street, St. Helena, CA 94574
Zumbathon Charity Event for Rett Syndrome
In Honor for Allison
Date: Friday, November 1st
Time: 5:00-7:30pm
Join us for an evening of instructed Zumba while raising money for Rettsyndrome.org. Admission is $10.
Contact Information:
Claudia Juarez
817-233-2189