One of the goals of our Rett Syndrome Scientific Meeting is to bring together researchers studying Rett and related fields in academia, industry, and governmental agencies from around the world. We invite all researchers to participate, discuss the latest in Rett syndrome science, and share their findings in this meeting.
IRSF’s Rett Syndrome Scientific Meeting will be held immediately before the main portion of the ASCEND 2022 Rett Syndrome National Family Summit in Nashville, Tennessee. It will consist of both poster and oral presentation sessions focused on basic, translational, and clinical work on Rett syndrome.
We’re gearing up for the ASCEND 2022 Rett Syndrome National Summit in Nashville!
GAYLORD OPRYLAND RESORT & CONVENTION CENTER
April 27-30, 2022
Designed to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around the world. Together we can overcome the challenges of Rett syndrome and reach the summit of hope and healing–a world without Rett syndrome.
Date: Saturday, September 24th, 2022
Time: 10:00 a.m. – 1 p.m. ET
Location: Drake Sports Park (6801 Drake Rd, West Bloomfield Township, MI 48322)
Event Chairs: Lisa Fenberg & Kate Ficano (Contact Email)
The Michigan Strollathon is back and in-person this Fall! Save the date to join us on Saturday, September 24th for our 13th annual stroll at Drake Sports Park in West Bloomfield Township, MI.
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, September 24th, 2022
Time: 10:00 a.m. – 1 p.m. CT
Location: Yanney Heritage Park – ERC Building (2020 W 11th St, Kearney, NE 68845)
Event Chairs: Jacy Horst, Megan Ladenburger, & Elly Gullion (Contact Email)
The Nebraska Strollathon is back and in-person this Fall! Save the date to join us on Saturday, September 24th for our 11th annual stroll at Yanney Heritage Park in Kearney, NE.
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Sunday, October 2nd, 2022
Time: 1-4 p.m. CT
Location: Environmental Learning Center (13550 Dakota Ave S, Savage, MN 55378)
Event Chairs: Mary Kallstrom (Contact Email)
The Minnesota Strollathon is back and in-person this Fall! Save the date to WALK N’ ROLL with us on Sunday, October 2nd for our 16th annual stroll at the Environmental Learning Center in Savage, MN.
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, October 8th, 2022
Time: 10:00 a.m. ET
Location: Cincinnati Zoo & Botanical Garden (3400 Vine St, Cincinnati, OH 45220)
Event Chairs: Brittney Gibson and Jen & Jim Magato (Contact Email)
The Cincinnati Strollathon is back and in-person this Fall! Save the date to join us on Saturday, October 8th for our 18th annual stroll at the Cincinnati Zoo & Botanical Garden.
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, October 8th, 2022
Time: 10:00 a.m. CT
Location: JCC St. Louis (2 Millstone Campus Drive, St. Louis, MO 63146)
Event Chairs: Joyce Opinsky, Amy Kreher, & Amanda Sommer (Contact Email)
The St. Louis Strollathon is back and in-person this Fall! Save the date to join us on Saturday, October 8th for our 15th annual stroll at the JCC St. Louis, also benefitting the St. Louis Rett Syndrome Clinic.
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, October 22nd, 2022
Time: 12-4 p.m. PT
Location: Whittier High School (12417 Philadelphia St, Whittier, CA 90601)
Event Chair: Sherri Brady (Contact Email)
The So Cal Strollathon is back and in-person this Fall! Save the date to join us on Saturday, October 22nd for our 20th annual stroll at Whittier High School.
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Sunday, October 30th, 2022
Time: 1:00 p.m. – 4 p.m. Central
Location: Gussie Field Watterworth Park (2610 Valley View Ln, Farmers Branch, TX 75234)
Event Chairs: Vanessa Peace (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, November 5, 2022
Time: 9:30 a.m. ET
Location: Tradewinds Park, Grandiosa Shelter (3600 W. Sample Rd, Coconut Creek, FL 33073)
Event Chair: Henry Perez (Contact Email)
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.