Events

Apr
10
Tue
Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Apr 10 @ 1:00 pm – 2:30 pm

Topic: Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Speaker: Dr. K Motil, BCM, Texas Children’s Hospital

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Audience questions are all addressed by our Speaker within the recording

May
8
Tue
IEP: Strategies for Rett Success
May 8 @ 1:00 pm – 2:30 pm

Topic: IEP: Strategies for Rett Success
Speaker: Valerie Owen, PhD

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

Jul
10
Tue
Communication- Making it Count
Jul 10 @ 1:00 pm – 2:30 pm

Topic: Communication- Making it Count
Speaker: Judy Lariviere, M.Ed.,OTR/L, UCSF

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

Aug
7
Tue
U.S.-Russia Rett syndrome Cultural Exchange
Aug 7 @ 1:00 pm – 2:30 pm

Topic: U.S.-Russia Rett syndrome Cultural Exchange
Speaker: Olga Timutsa, President, Rett Syndrome Association of Russia, Mother to Katerina
Olga Timutsa will be visiting the U.S. as a guest of Rettsyndrome.org for a cultural exchange focused on diagnosis, care, and life for children and adults with Rett syndrome and their families. Hear Olga share about life in Russia with Rett syndrome and how our research and efforts have a global impact.

Click Here to View Video

Aug
14
Tue
Understanding Autonomic Dysfunction in Rett Syndrome
Aug 14 @ 1:00 pm – 2:30 pm

Topic: Understanding Autonomic Dysfunction in Rett Syndrome
Speaker: Jeff Neul, MD, PhD, Vanderbilt University

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

Sep
11
Tue
Epilepsy: Incidence, Treatments & Research
Sep 11 @ 1:00 pm – 2:30 pm

Topic: Epilepsy: Incidence, Treatments & Research
Speaker: Eric Marsch, MD, PhD, CHOP

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Read the Q&A

Oct
9
Tue
Planning for a Protected Tomorrow with Special Update on ABLE Accounts
Oct 9 @ 1:00 pm – 2:30 pm

Topic: Planning for a Protected Tomorrow with Special Update on ABLE Accounts
Speaker: Mary Anne Ehlert, CFP, Protected Tomorrows, Inc

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Read the Q&A

Nov
13
Tue
Gross Motor Skills, benefits of Environmental Enrichment
Nov 13 @ 1:00 pm – 2:30 pm

Topic: Gross Motor Skills, benefits of Environmental Enrichment
Speaker: Jenny Downs, PhD Telethon Kids Institute, AU

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Dec
11
Tue
Siblings Unique Concerns, Unique Opportunities
Dec 11 @ 1:00 pm – 2:30 pm

Topic: Siblings Unique Concerns, Unique Opportunities
Speaker: Emily Holl, Director, Sibling Support Project

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Jun
11
Tue
Nutrition Strategies for Rett Syndrome
Jun 11 @ 1:00 pm – 2:30 pm

Topic: Nutrition Strategies for Rett Syndrome
Speaker: Suzanne Geerts, MS, RD, LD UAB

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