Events

Apr
12
Fri
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Rett Spectrum 2nd Annual Family Education Symposium
Apr 12 all-day
Apr
27
Sat
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Midwest Rett Syndrome Foundation Education Day
Apr 27 all-day

Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic – St. Paul, MN (Regional Association Partner)

May
18
Sat
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Philadelphia Ed Day
May 18 all-day
Jun
22
Sat
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Rettsyndrome.org Boston Ed Day
Jun 22 all-day

Rettsyndrome.org Ed Day hosted by TBD – Boston, MA

Jul
20
Sat
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Rettsyndrome.org Bay Area Ed Day
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. – 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge.

REGISTER NOW!

 

Aug
2
Fri
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Northwest Rett Syndrome Foundation Education Day
Aug 2 @ 9:00 am – Aug 4 @ 12:00 pm

2019 Family Conference of the Northwest Rett Syndrome Association

Communications Guidelines Pop-up