Events

Jun
28
Fri
Rip it for Rett
Jun 28 @ 7:00 am – 4:00 pm

Join us for a great time supporting a great cause, we hope to see you on June 28, 2019!
The Rip it for Rett, hockey themed golf tournament is a blast, a great round of golf on a great course with really awesome people.

Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. – 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge.

REGISTER NOW!

 

Jul
28
Sun
Scramble for a Cure
Jul 28 all-day
Aug
2
Fri
Northwest Rett Syndrome Foundation Education Day
Aug 2 @ 9:00 am – Aug 4 @ 12:00 pm

2019 Family Conference of the Northwest Rett Syndrome Association

Aug
8
Thu
Casting 4 A Cure
Aug 8 @ 9:00 am

Casting 4 A Cure is a loose band of compadres and compatriots who fly fish and fundraise to find a cure for Rett Syndrome. We have pulled together many of the fly fishing industry’s leaders and they have taken on the cause like it is their own. Come join us at one of the events or become a sponsor and help the thousands of girls affected by this crippling neurological disorder.

3 day single entry – $2,500.00
3 day team entry – $5,000.00

Location:
10 Warm Creek Ln.
Victor, ID 8345

Registration & Information

Aug
31
Sat
Pennsylvania Strollathon
Aug 31 @ 9:00 am

6th Annual Pennsylvania Strollathon

Join us for the 6th Annual Pennsylvania Strollathon

Saturday August 31st, 2019
Registration: 9:00am, Stroll: 10:15am
Location: Millvale Riverfront Park, Millvale PA?
Directions :: Website 
Event Chair: Christina Dean (christina.dean13@yahoo.com) & Jennifer Langzettel (langzettelj@duq.edu)

Registration & Information

Sep
7
Sat
Chicago Strollathon & Picnic
Sep 7 @ 11:00 am

13th Annual Chicago Strollathon

Join us for the 13th Annual Chicago Strollathon!

Saturday September 7th, 2019
When: 11:00am
Location: Kankanee State Park
Map ll Directions
Event Chair: Misty Gruenes (gruenesmisty@gmail.com)

Visit the Event page

Nebraska Strollathon
Sep 7 @ 1:00 pm

8th Annual Nebraska Strollathon

Join us for the 8th Annual Nebraska Strollathon

Saturday, September 7th 2019
Registration: 1:00pm, Stroll: 2:00pm
Location: Yanney Park, 2020 W 11th St, Kearney, NE 68845
Rotary Shelter by the Splash pad
Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion

Registration & Information

Sep
14
Sat
Raise a Glass
Sep 14 @ 3:00 pm

Raise a Glass logo banner

WHEN | Saturday, September 14th, 2019
TIME | 3:00pm-7:00pm
WHERE | Austins Bar & Grill: Directions | Website

Registration & Information

Sep
22
Sun
Portland Strollathon
Sep 22 @ 1:00 pm

14th Annual Portland Strollathon

Join us for the 14th Annual Portland Strollathon

Sunday, September 22nd
Registration: 1:00pm, Stroll: 2:30pm
Location: Rose Quarter, Portland OR
Directions :: Website
Event Chair: Lacey & Leigh Calvert 

Registration & Information