The Color Run® is partnering with Rettsyndrome.org in several major cities hosting The Color Run Dream Tour, Presented by Lay’s® to help increase Rett syndrome awareness and support efforts to find a cure.
Topic: Communication- Making it Count
Speaker: Judy Lariviere, M.Ed.,OTR/L, UCSF
(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording
Topic: U.S.-Russia Rett syndrome Cultural Exchange
Speaker: Olga Timutsa, President, Rett Syndrome Association of Russia, Mother to Katerina
Olga Timutsa will be visiting the U.S. as a guest of Rettsyndrome.org for a cultural exchange focused on diagnosis, care, and life for children and adults with Rett syndrome and their families. Hear Olga share about life in Russia with Rett syndrome and how our research and efforts have a global impact.
Topic: Understanding Autonomic Dysfunction in Rett Syndrome
Speaker: Jeff Neul, MD, PhD, Vanderbilt University
(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording
Topic: Epilepsy: Incidence, Treatments & Research
Speaker: Eric Marsch, MD, PhD, CHOP
Topic: Planning for a Protected Tomorrow with Special Update on ABLE Accounts
Speaker: Mary Anne Ehlert, CFP, Protected Tomorrows, Inc
Topic: Gross Motor Skills, benefits of Environmental Enrichment
Speaker: Jenny Downs, PhD Telethon Kids Institute, AU