RettEd: Communication Guidelines and Workbook for Rett Syndrome feat. Theresa Bartolotta, PhD
Nov 10 @ 1:00 pm

Please join on Tuesday, November 10, 2020 at 1:00pm (EDT) to learn how to put the Communication in Rett Syndrome Guidelines and workbook into real-world practice with Theresa Bartolotta, PhD, CCC-SLP, Program for Research and Support for Rett Syndrome, Monmouth University, NJ; Speech-Language Pathologist, Tender Ones Therapy Services, Dacula, GA and co-author of these guidelines.

Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone involved. Join this webinar to learn how.

Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.

Information & Registration

Vanderbilt Kennedy Center Rett Clinic Town Hall Meeting
Nov 21 @ 12:00 pm

Vanderbilt Kennedy Center Rett Clinic Town Hall Meeting

Date: Sat, Nov 21, 2020
Time: 12:00 PM – 1:30 PM

Are you wanting to understand the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family? Perhaps you would like an opportunity to re-connect and re-center with your Rett community?

We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Saturday, November 21, 2020, at 11am -12:30pm (CT).

Join us as, and the Rett Clinic team at Vanderbilt Kennedy Center discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities.

Information & Registration

RettEd: What Do They See? Vision in Rett Syndrome
Dec 8 @ 1:00 pm

Join us Tuesday, December 8th, at 1:00 pm (EDT) to hear from Dr. Tim Benke about Cortical Visual Impairment (CVI) in Rett syndrome. Our loved ones with Rett syndrome often exhibit particular eye movements or gaze patterns. Is this a motor behavior or visual strategy? What do our children see? How do they process visual information?

Dr. Tim Benke is the Director of Research at the Neuroscience Institute at Children’s Hospital Colorado, where he is also the Medical Director of the Rett Clinic. He also serves as an investigator in Rett Syndrome Natural History Study and’s Medical Advisor.

Register now, and submit your questions. Pre-submitted relevant questions will be addressed, and there will be time for write-in questions during the session.


Our RettEd Webcasts are Free, but registration is required. RettEd Webcasts are recorded. When you register, you will receive a link to the recording within 1-2 days after the presentation. is committed to standing with you today, to fighting to transform your tomorrow. Check out our other upcoming webcasts, as well as an incredible library of past webcasts on multiple Rett topics:


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