Children’s Hospital of Philadelphia Rett Clinic Town Hall Meeting

Children’s Hospital of Philadelphia Rett Clinic Town Hall Meeting

When:
November 18, 2020 @ 12:00 pm
2020-11-18T12:00:00-05:00
2020-11-18T12:15:00-05:00

Children’s Hospital of Philadelphia Rett Clinic Town Hall Meeting

Date: November 18
Time: 12:00pm

Are you wanting to better understand the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family? Perhaps you would like to re-connect and re-center with your Rett syndrome community?

We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Wednesday, November 18, 2020, at 12pm -1:30pm (ET).

Join us as Rettsyndrome.org, and the Rett Clinic team at Children’s Hospital Philadelphia discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities.

Then during the last half hour, we’ll be taking your pre-submitted questions*.

Guest Presenters:
Children’s Hospital of Philadelphia: Dr. Eric Marsh, medical director
Rettsyndrome.org State Representative
Rettsyndrome.org: Paige Nues, host

Information & Registration