2019 ED DAY EVENTS: 

Rett Syndrome Ed Days are designed to provide information, enrichment and connection for families, caregivers, educators, clinicians and therapists to empower our community. Topics and discussions will include: research updates, medical and therapeutic intervention strategies, state specific programs & services, communication strategies, and other unique workshops or social events per site. In general, childcare will not be provided but children are welcome and a quiet space for breaks and personal care will always be arranged.

Below are events hosted by Rettsyndrome.org and our Regional Rett Association partners. 

April 12, 2019 – Rett Spectrum 2nd Annual Family Education Symposium - St. Louis, MO  

April 27, 2019 – Midwest Rett Syndrome Foundation Education Day hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner) 

May 18, 2019 - Rettsyndrome.org Philadelphia Ed Day - Langhorne, PA 

June 22, 2019 – Rettsyndrome.org Ed Day hosted by Boston Children’s Hospital Rett Syndrome Program – Boston, MA  

  • Registration Opens Soon

July 20, 2019 – Rettsyndrome.org Ed Day hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett syndrome and Related Disorders at Camp Arroyo - Livermore, CA  

  • Registration Opens Soon

August 1-4, 2019 – Northwest Rett Syndrome Foundation Education Day – Portland, OR (Regional Association Partner)  

  • Registration Opens Soon

October 24-25, 2019 – New Jersey Rett Syndrome Association Education Day – Monmouth University, West Long Branch, NJ (Regional Association Partner)