Family Empowerment

COVID Update: Advice Regarding Returning to School

Tuesday, October 13, 2020

By Dr. Tim Benke, Medical Advisor Here is one big reminder: Get a flu shot as soon as possible! Please see prior guidance on this blog. Not much has changed: catching Covid-19 is still a risk to be avoided by all. Outside the home: The child should wear a cloth mask if they can … Read More

Serving & Equipping Families with Rett

Wednesday, July 29, 2020

By Samantha Brant, Family & Community Engagement Manager, Mom to Macy When most families find out their child has Rett syndrome, it’s the first time they’ve ever heard of the disease. Often they’re overwhelmed with emotions and fear and questions as they try to figure out what to do next, and many families search the … Read More

Little girl with rettsyndrome

You are not alone

Monday, April 29, 2019

Did your child recently receive a Rett syndrome diagnosis? You are not alone. meets you at diagnosis and helps you through every facet of this unexpected journey. Our mission is to accelerate research toward treatment and a cure, but we are also committed to empowering families. It’s essential that families are equipped with information, … Read More

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