Press Releases Archives | International Rett Syndrome Foundation

October 28, 2025

IRSF Launches Family Listening Sessions to Strengthen Support for Rett Community

New initiative invites parents and caregivers to share their experiences, ensuring that programs and resources reflect the real needs of families.

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Introducing My Rett Ally: A New Tool to Support Caregivers

My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance care coordination.

IRSF Welcomes Three New Members to its Board of Directors

Mary Engel, Laura Stoppel, and Steve Wood have been appointed to the IRSF Board, effective July 1, 2023.

IRSF Establishes Research Fund for Males with Rett Syndrome

The fund is established thanks to an inaugural gift from the Otis Family in honor of their son, Barrett.

IRSF Awards $4.4M in Rett Syndrome Research Grants

Our commitment to setting up the next wave of Rett breakthroughs continues with the largest annual investment in our Foundation’s history.

IRSF Receives $500,000 Donation from Vezbi Super App

Along with the donation, Vezbi will be creating custom Micro-apps and Communities for use by IRSF and the community of families impacted by Rett syndrome that the foundation serves.

IRSF Launches Clinical Trial Committee to Support the Development of Rett Syndrome Treatments

The Clinical Trial Committee includes 14 leading U.S. Rett syndrome specialists.

Federal Funding Bill for 2022 Supports Research for Rett Syndrome

The Omnibus Fiscal Year 2022 (FY22) appropriations bill passed by Congress in early March includes federal funding to support research on Rett syndrome.

Hive Networks & IRSF Partner to Advance Research and Treatment for Rett Syndrome

Hive Networks today announced a multi-year partnership with the International Rett Syndrome Foundation to provide a digital health platform to support the Rett community.

IRSF Press Releases