2nd Annual Raise a Glass for Rett Virtual Gala
Nov 6 @ 8:00 pm

2nd Annual Raise a Glass for Rett Virtual Gala

Date: November 6, 2021
Time: 8:00pm

Be inspired by stories from our community, hear from Executive Director Melissa Kennedy and Chief Science Officer Dominique Pichard, learn about the incredible work that the International Rett Syndrome Foundation is doing to accelerate research and empower families, and much more.

Before the evening is over, we hope to surpass our goal of $200,000, getting us closer to a world without Rett. You can check our progress here, as fundraising is already underway!

Information & Registration

RettEd: Next Level Nutrition
Nov 10 @ 4:30 pm

Next Level Nutrition

Getting proper nutrition is especially challenging for those with Rett. The news is always filled
with information on special diets, allergies, and food sensitivities, but how do you sift through
it? How do you decide what’s best for your loved one with Rett? This interactive webinar with
parent panel and dietician expert Suzanne Geerts can help! 

Date: Wednesday, November 10, 2021
Time: 4:30pm

Registration is free but required.

Registration & Information

Submit your questions when you register.

International Rett Syndrome Foundation’s educational programming is made possible through a
sponsorship from ACADIA Pharmaceuticals, Taysha Gene Therapies, and Novartis Gene Therapy.

ASCEND 2022 Rett Syndrome National Summit
Apr 27 – Apr 30 all-day

We’re gearing up for the ASCEND 2022 Rett Syndrome National Summit in Nashville!
April 27-30, 2022

Designed to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around the world. Together we can overcome the challenges of Rett syndrome and reach the summit of hope and healing–a world without Rett syndrome.

Information & Registration

9th World Rett Syndrome Congress
Sep 28 – Oct 1 all-day

9th World Rett Syndrome Congress in Australia

Dates: 28th Sept to 1st Oct 2022

9th World Rett Syndrome Congress has been postponed due to COVID until 2022.

Congress venue
The QT Hotel, Gold Coast, which is located in Surfers Paradise, Queensland, will remain as the Congress venue.

Presenters who originally accepted RSAA’s invitation to speak at the Congress are being notified of the latest postponement and will be reinvited. Hopefully, the revised dates will not affect their availability.
Congress website

Work continues on building the Congress website to a point where it will meet the information needs of potential attendees. Online registration for the Congress is now open which may be of particular interest to Australian families who have included, or wish to include, coverage of the registration fees in their National Disability Insurance Scheme (NDIS) plans.

An online abstract submission portal has been completed but won’t be available for submissions until early 2022.

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