2nd Annual Raise a Glass for Rett Virtual Gala
Date: November 6, 2021
Be inspired by stories from our community, hear from Executive Director Melissa Kennedy and Chief Science Officer Dominique Pichard, learn about the incredible work that the International Rett Syndrome Foundation is doing to accelerate research and empower families, and much more.
Before the evening is over, we hope to surpass our goal of $200,000, getting us closer to a world without Rett. You can check our progress here, as fundraising is already underway!
Next Level Nutrition
Getting proper nutrition is especially challenging for those with Rett. The news is always filled
with information on special diets, allergies, and food sensitivities, but how do you sift through
it? How do you decide what’s best for your loved one with Rett? This interactive webinar with
parent panel and dietician expert Suzanne Geerts can help!
Date: Wednesday, November 10, 2021
Registration is free but required.
Submit your questions when you register.
International Rett Syndrome Foundation’s educational programming is made possible through a
sponsorship from ACADIA Pharmaceuticals, Taysha Gene Therapies, and Novartis Gene Therapy.
We’re gearing up for the ASCEND 2022 Rett Syndrome National Summit in Nashville!
GAYLORD OPRYLAND RESORT & CONVENTION CENTER
April 27-30, 2022
Designed to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around the world. Together we can overcome the challenges of Rett syndrome and reach the summit of hope and healing–a world without Rett syndrome.
9th World Rett Syndrome Congress in Australia
Dates: 28th Sept to 1st Oct 2022
9th World Rett Syndrome Congress has been postponed due to COVID until 2022.
The QT Hotel, Gold Coast, which is located in Surfers Paradise, Queensland, will remain as the Congress venue.
Presenters who originally accepted RSAA’s invitation to speak at the Congress are being notified of the latest postponement and will be reinvited. Hopefully, the revised dates will not affect their availability.
Work continues on building the Congress website https://rettworldcongress.org to a point where it will meet the information needs of potential attendees. Online registration for the Congress is now open which may be of particular interest to Australian families who have included, or wish to include, coverage of the registration fees in their National Disability Insurance Scheme (NDIS) plans.
An online abstract submission portal has been completed but won’t be available for submissions until early 2022.