IRSF Sets Up Next Wave of Rett Breakthroughs with $2.3 M Research Investment
Dr. Dominique Pichard, IRSF Chief Science Officer Get ready for the next wave of research targeting treatments and cures for Rett syndrome. IRSF is making it happen. “Because Rett syndrome […]
COVID UPDATE: Best practices according to our medical expert
As the COVID pandemic continues with surges and new variants, we have asked IRSF Medical Advisor Dr. Tim Benke, Rett Clinic Medical Director at Children’s Hospital Colorado, to provide information […]
Help Unlock Treatments & Cures for Rett with IRSF’s Rett Syndrome Registry
Your family can be the key that researchers and industry need to create a world without Rett. And the International Rett Syndrome Foundation (IRSF) is making it easier than ever […]
International Rett Syndrome Foundation’s New Center of Excellence Network
The International Rett Syndrome Foundation is committed to advancing and expanding our community’s access to best-in-class Rett syndrome care. Toward that end, we are designating 15 partner clinics across the […]
Kelsey & Toyua: Friendship & Hope Just 20 Minutes Away
Kelsey Clark felt alone and isolated when her five-year-old daughter Charlee was diagnosed with Rett syndrome in April 2019. Kelsey, her partner Jordan, Charlee, and their two-year-old son Bennett live […]
Board of Directors Welcomes Alan Shukovsky —The Father of a Boy Living With Rett
When Alan Shukovsky and his wife, Eva, were getting married, their rabbi told them that it was really important for their family to find a personal mission—a cause—they could support […]