Mickie McCool

Mickie McCool


Mickie McCool is a tenacious advocate for her 24-year-old daughter, Ellie. She relentlessly believes in Ellie’s abilities and potential is determined not to let Ellie be defined by Rett Syndrome. Through Mickie’s efforts, Ellie thrived in an inclusive regular education environment and obtained her high school diploma right on schedule. Through her message of hope, Mickie strives to open the minds of those supporting individuals with Rett syndrome in learning and inclusion. Mickie is a graduate of the Missouri Partners in Policymaking Program, has served as a Missouri Regional Representative and as a member of IRSF’s Family Advisory Board. In addition to presenting at past IRSF conferences, she had the opportunity to address the 2012 Rett Syndrome World Congress in New Orleans. Mickie feeds her passion these days by serving on the Rett Parent Council for Acadia Pharmaceuticals, promoting the Rett Spectrum Clinic at St. Louis Children’s Hospital and Washington University Medical School and as a spiritual director in the St. Louis Archdiocese.