Our Financials & Our Partners

Our Financials

We take our responsibility to donors seriously

We’re proud to be continually ranked high among other charities by Charity Navigator. Learn more about Charity Navigator ratings

"Charity Navigator works to guide intelligent giving. Our goal is to help people give to charity with confidence. At the same time, we aim to help charities by shining lights on truly effective organizations. In doing so, we believe we can help ensure that charitable giving keeps pace with the growing need for charitable programs."


We are obsessed with efficiency

91% of every dollar funds our research and family support programs.

Rettsyndrome.org would like to thank the individuals, corporations, organizations and foundations who have made a financial contribution to Rettsyndrome.org. We would also like to thank the hundreds of volunteers and in-kind contributors who enable our mission. It is with great appreciation that we acknowledge your trust and generosity. Your help is our hope for a brighter future!


Our Partners

We believe it takes an army of multi-talented people using every ounce of creativity, strength, know-how and energy to win the battle against Rett syndrome. We must be united in this effort.

We would like to thank the following organizations for exceptional financial and in-kind support. Let's celebrate our collaboration and make an even greater impact.

To learn more about partnering with Rettsyndrome.org, please email Gordy Rich. Help End Rett!

2015 Funding Partners

HER Heroes ($50,000+)

Albemarle Foundation

Albemarle Foundation serves as the primary source and mechanism for philanthropic giving of Albemarle, the world’s leading developer, manufacturer and marketer of complex chemicals. Since its beginning, the Foundation has delivered over $15 million to more than 200 deserving agencies.



Pro RETT Ricerca

Pro RETT Ricerca is an Italian association of parents of girls suffering from Rett syndrome, dedicated to funding Rett syndrome research. One of our greatest accomplishments is our contribution that helped to launch the San Raffaele Rett Research Center, the first Italian research laboratory solely dedicated to Rett syndrome research.


Reading Rock


Rett Syndrome Association of Massachusetts, Inc.

Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities.


Robert & Adele Schiff Foundation



HER Knights ($25,000 - $49,999)
Acre Investment Company, LLC Gary Sakwa Liv Trust
Boston Bruins New England Sports Network
Boston Properties, LP New Jersey Rett Syndrome Association
Brown & Root Industrial Services, LLC Schwab Charitable Fund
Casting 4 A Cure The Color Run, LLC
Circle K - Midwest The Leroy Schecter Foundation, Inc.
Dani Lococo Foundation International Foundation for CDKL5 Research
Delaware North Companies, Inc.  
Ella Foard Foundation for Rett Syndrome  
Fidelity Charitable Gift Fund  


HER Angels ($10,000 - $24,999)
Accenture, LLP Manhattan Beer Distributors, LLC
Allen, Matkins, Leck, Gamble, Mallory & Natsis, LLP New England Development
Anne and Paul Marcus Family Foundation Newmark & Company Real Estate, Inc
Bank of America Charitable Gift Fund T.S. & Juanita Ballance Foundation
Barack, Ferrazzano, Kirschbaum & LLP Rochester Area Community Foundation
Beta Sigma Phi Rocky Mountain Rett Association
Brookfield Financial Properties, LP Seyfarth Shaw Attorneys, LLP
Callahan, Inc. Southern Ionics, Inc.
ICAP Services North America, LLC Stagnaro Distributing, Inc.
IMC Chicago Charitable Foundation Suffolk Cares, Inc.
Intercontinental Charities T.S. & Juanita Ballance Foundation
Intercontinental Management Corporation The Boeing Company
J. Calnan & Associates, Inc. The Cornelius F. Doolan Memorial Fund
JKK Charity Fund The Huntingdon Valley-Churchville Rotary Club
Main Street Bank Transwestern RBJ, LLC


Natural History Study Partner
National Institutes of Health (NIH)


In-kind Contributors
Akin, Gump, Strauss, Hauer & Feld, LLP Reading Rock
Attention Span Media University of Alabama Birmingham
Baylor University University of California San Diego
Boston Children's Hospital Wiley Ryan
Greenwood Genetics Center