Meet Our Team
With more than half of our staff and board being parents, grandparents, or caregivers of someone with Rett syndrome, we deeply understand the challenges of living every day with the disorder. Our team also includes the world’s leading scientists and medical experts on the cutting edge of Rett research and treatment development.
Staff & Leadership
Board of Directors
Scientific Advisory Board
The Scientific Advisory Board (SAB) informs IRSF’s scientific priorities by identifying emerging trends, research gaps, and opportunities for progress. The members of this exceptional group come from diverse scientific backgrounds, each recognized as a leader in the Rett research field with a track record of success.
Kathie Bishop, PhD
Rare Diseases Consultant
James Ellis, PhD
Professor, Department of Molecular Genetics The University of Toronto Senior Scientist, Developmental and Stem Cell Biology The Hospital for Sick Children (SickKids)
Harrison Gabel, PhD
Associate Professor of Neuroscience Washington University in St. Louis
Rocco Gogliotti, PhD
Assistant Professor, Department of Molecular Pharmacology and Neuroscience Loyola University Chicago
Wendy Gold, PhD
Director of Academic Career Development (SoMS) The University of Sydney Head of Molecular Neurobiology Research Group Sydney Children’s Hospitals Network Adjunct Research Scientist The Children’s Medical Research Institute
Steven Gray, PhD
Associate Professor, Department of Pediatrics Director, UTSW Viral Vector Facility University of Texas Southwestern Medical Center
Lucas Pozzo-Miller, PhD
Mall Family Endowed Professor for Genetic Autism Research, Department of Pediatrics and Human Development Michigan State University
Steve Moss, PhD
Professor of Neuroscience and Director of the AstraZeneca-Tufts Laboratory of Basic and Translational Neuroscience Tufts University
Medical Advisory Board
The Medical Advisory Board (MAB) enhance our efforts to expand the Rett syndrome clinical network, ensure best-in-class care, and provide expert consultation across the U.S. and around the world. They collectively bring decades of patient and clinical expertise to IRSF, helping us better serve the Rett community.
Elizabeth Berry-Kravis, MD, PhDChair
Professor of Pediatrics, Neurological Sciences, and Anatomy and Cell Biology
Director, RUSH Pediatric Neurosciences F.A.S.T. Center for Translational Research
Rush University Medical Center
Amitha Ananth, MD
Pediatric Neurologist and Geneticist and Director of the Rett Syndrome and Related Disorders Clinic Children's of Alabama
Dallas Armstrong, MD
Child Neurologist and Director, Rett & Related Disorders Clinic Children's Health Dallas and University of Texas Southwestern School of Medicine
Tim Benke, MD, PhD
Professor of Pediatrics, Neurology, Pharmacology and Otolaryngology University of Colorado School of Medicine Ponzio Family Chair in Pediatric Neurology Research and Director of Research, Neuroscience Institute Children’s Hospital Colorado
Tim Feyma, MD
Child Neurologist, Rett Syndrome and Movement Disorder Clinic Gillette Children’s Specialty Healthcare
Aleksandra Jacobs, MD, PhD
Professor of Neurology Albert Einstein College of Medicine Director of Center for Rett Syndrome Children’s Hospital at Montefiore
David Lieberman, MD, PhD
Child Neurologist and Director, Comprehensive Rett Syndrome Clinic Boston Children’s Hospital
Eric Marsh, MD, PhD
Child Neurologist Children’s Hospital of Philadelphia (CHOP) Clinical Director, Orphan Disease Center University of Pennsylvania
Jeffrey Neul, MD, PhD
Child Neurologist, Annette Schaffer Eskind Chair, and Director of the Vanderbilt Kennedy Center for Research on Human Development Vanderbilt University Medical Center
Robin Ryther, MD, PhD
Child Neurologist and Pediatric Epileptologist Washington University in St. Louis
Steven A. Skinner, MD
President and CEO Greenwood Genetic Center
Bernhard Suter, MD
Assistant Professor Baylor College of Medicine Director Blue Bird Rett Center
Join Our Team
IRSF is a virtual organization based in Cincinnati, Ohio, with employees across the United States. We are always on the lookout for great talent who share in our passion and mission! Here is a list of our current openings:
Event & Program Support SpecialistPosted on 9/10/2025
Position Summary:
The Event & Program Support Specialist is a part-time, in-office position that plays a vital role in supporting the success of the organization’s events and programs. This individual must be highly organized, solutions-focused, and team-oriented, with a positive attitude and strong attention to detail.
Schedule:
This role requires a commitment of approximately 8–12 hours per week, working 2 to 3 days per week for 4 hours each day. Workdays will fall on Monday, Wednesday, and/or Thursday, with some flexibility in hours based on mutual availability.
Reporting Structure:
This is an in-office, Cincinnati-based role that reports to the Events Manager.
Job Responsibilities:
- Provide administrative and general support to the Events team and other Program Directors.
- Provide support in preparing and assembling project documents, presentations, and reports.
- Monitor and maintain event and marketing materials inventory.
- Assemble packages and manage shipping for various events.
- Assist Events team with administrative activities.
- Manage all shipping requests.
- Support programs as needed.
- Review documentation, receipts, and invoices upon request.
Desired Qualifications:
- Reliability
- Strong customer service orientation
- Strong project management knowledge and prioritization, with the ability to deliver multi-faceted projects on time.
- Brings enthusiasm for the tasks at hand to his/her work, as well as a sense of creativity and an interest in continual improvement.
- Ability to proactively recommend solutions to potential problems and to develop plans for addressing problems on the fly when necessary.
- Experience with Microsoft Office suite (Word, Excel, PowerPoint, Outlook etc.) and its editing tools.
- Understanding of Zoom platform
- Can-do attitude
Interested parties, please send a Cover Letter and CV to salmager@rettsyndrome.org or click “Apply Now” below.
Join Our Team
IRSF is a virtual organization based in Cincinnati, Ohio, with employees across the United States. While there are no openings right now, we are always on the lookout for great talent who share in our passion and mission.
Give them the best opportunity for a better life.
Your investment funds trailblazing research toward Rett treatments and a cure, enables family empowerment, and helps raise awareness about this rare disorder that impacts nearly every aspect of life.