About About IRSF
The International Rett Syndrome Foundation (IRSF) is dedicated to improving the lives of individuals and families affected by Rett syndrome. We provide resources, support, and advocacy while funding trailblazing research to develop effective treatments for Rett syndrome.
IRSF exists with a single purpose: to transform the lives of individuals and families living with Rett syndrome every single day. Learn about the history of our Foundation, our track record of delivering real results, and our promise to the Rett community.
With more than half of our staff and board being parents, grandparents, or caregivers of someone with Rett syndrome, we deeply understand the challenges of living every day with the disorder. Together, we collaborate with leading experts in research and clinical care to advance the mission of the Foundation and improve outcomes for those living with Rett.
We work with a network of researchers, clinicians, and organizations to advance the understanding and treatment of Rett syndrome. Our partners are instrumental in driving change and creating new opportunities for individuals and families impacted by Rett.
At IRSF, we are committed to transparency and responsible stewardship of the funds we receive. We provide annual reports detailing our finances and the impact of every dollar donated to our cause.
Stay up-to-date on the latest advancements in Rett syndrome research, IRSF initiatives, and community news by subscribing to our newsletter.
Have questions or want to get in touch? We’re here to help! Whether you’re seeking support or want to learn more about how you can get involved, we’d love to hear from you.
Give them the best opportunity for a better life.
Your investment funds trailblazing research toward Rett treatments and a cure, enables family empowerment, and helps raise awareness about this rare disorder that impacts nearly every aspect of life.