Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: an overview of Rett syndrome, research updates, medical and therapeutic interventions.

Program is subject to change.

WHEN | Saturday, May 18, 2019

WHERE | Sheraton Bucks County Hotel, 400 Oxford Valley Road, Langhorne, PA 19047

TIME | 8:30a.m. - 4:30p.m.

Keynote speakers:

  • Eric Marsh, MD, PhD, Medical Director and Rett Syndrome Clinical Research*
  • Holly Dubbs, MS, LCGC, Genetic Counselor*
  • Joni Saby, PhD, Postdoctoral Fellow, Clinical Research*
  • Dallas Armstrong, MD, Rett Syndrome Research Fellow, Epilepsy Program*
  • Anne-Ashley Field, OTR/L, CHOP Division of Occupational Therapy*
  • Paige Nues, Director of Family Empowerment,

*Children's Hospital of Philadelphia Rett Syndrome Center of Excellence


$10/per person. Diagnosed children are free.


Presentations, interactive panel discussion, continental breakfast and lunch.

Respite will not be provided, but there will be a quiet room available for down time as needed.

Contact Paige Nues at or Holly Dubbs at with questions.

Hotel Info:

Rooms at the Sheraton Bucks County Hotel: $119/night.
Contact Nicole McDevitt, 215-269-3408, for the event room rate.


Parking at the Sheraton is free.

Social Opportunity

Visit our RSO Philadelphia Facebook Event to learn more about the social activities being planned at nearby Sesame Place.


This day is made possible by a generous grant from the following